Alex is the first in his family to have VHL.

He and his family are fighting back -- fighting VHL, and fighting cancer.

 

Alex and his sister Amy at the beach

 

 

He has been our spokesperson for the Combined Federal Campaign for two years.

He has been featured in the press and on this website a number of times.

His Aunt Sally writes about him regularly in her blog.

Thanks, Alex, for your tireless efforts to raise visibility of this disease, and help us find a cure!

• Alex's Birthday 2005
• Combined Federal Campaign spokesperson, 2005-06
• Two Alex's, One Dream 2006
• Aunt Sally's Blog