PLEASE NOTE: All of the medical facilities listed on this page have VHL CCC teams that have been evaluated and approved by VHL specialists comprising the Clinical Advisory Council. However, not all specialists at these facilities are on the CCC team. As such, you may very well encounter a physician working at an institution with a CCC that does *not* have experience with VHL. (You may also find specialists that have some experience with VHL but are not members of the CCC team that has been evaluated by the Clinical Advisory Council.) The VHL Alliance is *only* endorsing the VHL CCC team and its members. Please make sure to communicate with the CCC’s Point of Contact to verify that you receive care from specialists that have experience caring for VHL patients.
University of California, Los Angeles (UCLA).
Contact: Donicia Collins.
University of Miami.
Contact: Talia Donenberg, MS, CGC.
Tel: 305.243.3627; Fax: 305.243.3919
Moffitt Cancer Center, Tampa.
Contact: Jenni Ocampo, RN, BSN.
Primary Nurse for Dr. Spiess – GU Clinic
Tel: 813.745.8119; Fax: 813.449.6726
Indiana University, Simon Cancer Center, Indianapolis.
Contact: Amy Tennant, RN, BSN, Kidney Cancer Services Clinic.
The Alvin J. Siteman Cancer Center (SCC) at Barnes-Jewish Hospital and Washington University School of Medicine, St. Louis.
Contact: Kim Mullen.
Tel: 314.454.8775; Fax: 314.454.5244
Montefiore Einstein Center for Cancer Care, Bronx.
Contact: Monique White, NP-C.
Tel: 718.862.8840 ext 236; Fax: 718.862.8852
SUNY Upstate Medical University, Syracuse.
Contact: Jennifer Lee
Tel: 315-464-6031; Fax: 315-464-6117
Ohio State University Wexner Medical Center.
Contact: Rachel Queen, RN.
University of Pittsburgh, Pittsburgh.
Contact: Darcy Thull, MS, CGC.
Tel: 800.454.8156 or 412-641.1466; Fax: 412-641.1132
Vanderbilt Hereditary Cancer Clinic, Nashville.
Contact: Kate McReynolds, APRN, MSc, MSN, ANP-BC, AGN-BC.
Tel: 615.343.7400; Fax: 615.343.3343