PLEASE NOTE: All of the medical facilities listed on this page have VHL CCC teams that have been evaluated and approved by VHL specialists comprising the Clinical Advisory Council. However, not all specialists at these facilities are on the CCC team. As such, you may very well encounter a physician working at an institution with a CCC that does *not* have experience with VHL. (You may also find specialists that have some experience with VHL but are not members of the CCC team that has been evaluated by the Clinical Advisory Council.) The VHL Alliance is *only* endorsing the VHL CCC team and its members. Please make sure to communicate with the CCC’s Point of Contact to verify that you receive care from specialists that have experience caring for VHL patients.
In addition to existing for at least 2 years as strong CCCs, Comprehensive Clinical Care Centers (CCCCs) have been recognized for additional depth of expertise and experience treating VHL and their dedication to a true team approach for VHL patients. These centers have also made a commitment to educating their local physician communities about VHL. Centers are designated as Adult, Pediatric, or All Ages.