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Family Index of Articles
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Research projects looking for help
Coping and Stress Management
"Moderate endurance exercise, such as brisk
walking, stimulates positive changes in ... the body's
first lines of defense ... On the other hand, high intensity
exercise may have a negative impact on immune function."
- Full Catastrophe
Living : Using the Wisdom of Your Body and Mind to
Face Stress, Pain, and Illness, by Jon Kabat-Zinn
- Guided Imagery
- Living with
a Rare Disorder
- Living with
a Brain Tumor, adapted from U.K. Brain Tumour Action and
the American Brain Tumor Association
- Families Under
Stress
- The VHL Athlete
- Disability
and Challenge, by Fred Johnson
- Spiritual Coping, with David Torres (abstract)
- Life and Living, with Jeanne S. Hoffman (abstract)
- Burnout: rekindling the flame, with Joan McCarthy (abstract)
- Keep laughing to stay healthy, with Jane Hill (abstract)
- Komen Kids, with Kelly Hill (abstract,
article)
- Family Coping, with Jeanne S. Hoffman (abstract)
- Examining the
Faith Factor, by Herbert Benson
- Keeping Faith,
by Craig Warnick, Maryland (coping, personal story)
- Most Important
Person, by Craig Lundsted, MSW
- Strength from
Adversity
- Cancer Defense
and Sleep
- The Sky is
Falling, by Patricia F., California
- How Are You?
Manage Your Own Medical Journey, review of a new book by Patricia
Foote, California
- The Friend
Who Just Stands By -- dedicated to Jay
Communications
Complementary Therapies (see also Nutrition)
Ethical, Legal, and Social Implications of Human Genome Research
Childbearing Issues
- Childbearing
Choices- a series of true stories shared by members
with definitions and index to this series of articles
and an excerpt from the VHLFA Policies
- Professional
Perspective, by Debra Collins, genetic counselor, University
of Kansas Medical Center, Kansas City
- Mother Care
- Pre-Implantation
Testing, by Luba Djurdjinovic, Genetic counselor, Ferre
Institute, Utica, NY
- Using PGT,
Opinions from the MEN/VHL Conference in the Netherlands,
June 1997, reported by Joyce Graff
- Understanding
Adopted Children and Families, reviewing The Family of
Adoption by Joyce Maguire Pavao
DNA Diagnosis in Children
Insurance
Job Accommodation, Keeping your Job
See Links
Nutrition
Possible Danger of Post-treatment Complications
Regional Support Groups
- Use our Search utility and search
for the state or country you wish
Information for Teens
Information for Grandparents
Resources
Personal Stories
- You can also use the Search
utility to search for keyword "mystory".
Add geographic or medical terms to narrow the search -- "mystory
and New York" or "mystory and pheo"
- A Patient's Perspective,
by Altheada Johnson, Brooklyn, New York
- KARTOON,
by Keith "KARTOON" Richards, Brooklyn, New York
- Pheos
and Children, by Alison E., Texas
- It's
in the Genes ... of some Pretty Terrific People
- New Chairman for
Kansas and Missouri, Barbara S., Kansas
- Brooke McLaurin:
Miss North Carolina 2005
- Another Great Birthday! Alex
A., New Jersey
- Gokey-Thomas Can't
Stop Smiling about "Amazing" Day, by Scott Kindberg,
Post-Journal, Jamestown, New York
- Top 40 Under
40 - Scott C., New Jersey
- Kortney's
story - Sharon H., Michigan
- Miracles,
by Audrey C., North Carolina
- Eddie's Story,
by Linda G., Georgia
- VHL Family
in Hungary, Hannah S., Budapest
- The VHL Athlete,
Jennifer K., Australia
- Learning from
VHL, by Mary P., Utah
- Success and
Recognition, by Paul B., Quebec, Canada
- A Family Affair,
by Paul & Gay V., Australia
- We Thank our
Family, by Peggy & Don M., Mississippi
- The Danish Association
for von Hippel-Lindau, by Richard & Vibeke H., Denmark
- Keeping Faith,
by Craig Warnick, Maryland
- The Long Road
to Diagnosis, by Pierre B., Arizona
- Paralyzed?
Don't Give Up too Soon!, by Gale L., Florida
- How
Are You? Manage Your Own Medical Journey, by Patricia
S. Foote includes her VHL story and practical coping tools
- A Shared Enemy: Family Fighting
Ignorance that Surrounds Hereditary Disease. by M. Scott
Morris, reporter
- LoriAnn's Gift,
by Janice J., New Jersey
- Wedding Celebration,
by Ashlee P., Saskatchewan
- Melissa T.
of Texas prepares for the Lake Placid Triathlon 2005
- Woman hopes
to Educate Doctors, by Scott Rockefeller, Binghamton,
New York
- Birthday Fundraiser
in Canada, by Trish B., Alberta
- London Concert
honors Tim Mason, by Marshall Marcus and Jan Mason
- Remembering
Tom Werner, by Evelyn Werner
- Artist and
Entrepreneur, by Pierre Jacomet, Chile
- Lifetime Achievement
Award to Mike Murray
- God's Living
Trees, a poem by Sherri D., Tennessee
- Retired Marine
Fights for our Lives, Jay Platt, North Carolina
- There You Are!,
Boston cabaret benefit night
- Maria and the
Baby Seals - Maria S., Pennsylvania
- Volunteers Making a Difference
How you can help VHLFA
History of VHL
- Y. Edward Hsia, M.D., Introduction
to Hawaii 96 Symposium
- James M. Lamiell, M.D., History of VHL (abstract,
full article)
- Hartmut P.H. Neumann, M.D., VHL: progress, problems, and
prospects (abstract,
report)
- Joyce W. Graff, VHL: consumer concerns, needs, and hopes
(abstract, report)
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