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VHLFA Staff and Board of Directors
Staff Current Directors Medical Advisors International Affiliates Advisors Founders
Joyce Graff, Executive Director, Editor of the VHL Family Forum.
Hannah Costa, Office and Gifts Assistant
Jessica Costa, Research Services Coordinator
Mary Lou Linn, Member Services Coordinator
Robin Cochrane, Publications Assistant
List of current Board of Directors and Medical Advisory Board
and their affiliations
Other than staff, all persons named
on this page are volunteers, who receive no compensation for their services
to the VHL Family Alliance.
Bruce Weinberg,
J.D., Chairman of the Board. San Francisco, California.
Camron King, Vice Chairman, California Wine Growers Association, Sacramento
Christol Sorrell, Treasurer, Hospice of the North Country, New York
Linda S. Berk, Secretary, Retired paralegal
Sunny Greene, Career Counselor, Retired,
Falls Church, Virginia
Robert Lydon, National Tax Review Service, Chicago (died 12/07)
Jeanne McCoy, Junior League, Greenville, SC
Tom Rath, Global Practice Leader, Gallup Organization,
Washington, D.C.
Bill B. Scheitler, S&H Marketing, Remsen, Iowa
Robert E. Schoenhals, Director. Financial analyst, Daimler-Chrysler, Detroit.
Debra L. Collins,
M.S., Division of Genetics, University of Kansas Med Center, Kansas
City, Kansas
Eric Jonasch, M.D., Urologic Oncology, M.D. Anderson Cancer Center, Houston, Texas
Richard Alan Lewis,
M.D., Professor of Ophthalmology, Pediatrics, Medicine, and Molecular
and Human Genetics and Faculty Associate at the Huffington Center on
Aging, Baylor College of Medicine, Houston, Texas
John A. Libertino,
M.D., Chair, Institute of Urology, Lahey Clinic, Burlington, Massachusetts
Joseph Locala, M.D.,
Department of Psychiatry and Psychology, Cleveland Clinic Foundation,
Cleveland, Ohio
Eamonn R. Maher, M.D., F.R.C.P., Professor
of Medical Genetics, University of Birmingham, England
Virginia V. Michels, M.D., Department of
Medical Genetics, Mayo Clinic, Rochester, Minnesota
Haring J. W. Nauta,
M.D., Ph.D., Chief of Neurosurgery, University of Texas Medical Branch,
Galveston, Texas
Hartmut P. H. Neumann, M.D., Department
of Nephrology, Albert-Ludwigs University, Freiburg, Germany
Andrew C. Novick,
B.S., MDCM, Department of Urology, Cleveland Clinics, Cleveland, Ohio
Edward H. Oldfield, M.D., Chief, Surgical
Neurology Branch, National Institute of Neurological Disorders &
Stroke, Bethesda, Maryland
Stéphane
Richard, M.D., Neuro-Oncologie, Necker Hospital, Paris-Sud, France
Armand Rodriguez, M.D., Family Medicine,
Fort Lauderdale, Florida
Medical Emeritus
Lloyd M. Aiello, M.D.,
Chief, Beetham Eye Institute, Joslin Diabetes Center, Boston, Massachusetts
Yujen Edward Hsia,
M.D., Professor Emeritus, Department of Genetics, University of Hawaii,
Honolulu, Hawaii
Col. James M. Lamiell, M.D., Chief, Clinical
Investigation Regulatory Office, U.S. Army Medical Center and School,
Fort Sam Houston, Texas
R. Neil Schimke,
M.D., Dir. of Endocrinology, Metabolism & Genetics, University of
Kansas Med Center, Kansas City, Kansas
Robert B. Welch,
M.D., Chairman Emeritus, Department of Ophthalmology, Greater Baltimore
Med Center, Baltimore, Maryland
Contact people are available in these and other countries; call for a referral
AUSTRALIA: Jennifer Kingston
BRAZIL: J. C. Casali da Rocha
BELGIUM: Chris Hendrickx
CANADA: Jill Shields
CHILE: Pierre Jacomet
DENMARK: Richard & Vibeke Harbud
ENGLAND: Mary Weetman
FRANCE: Gilles Brunet
GERMANY: Gerhard Alsmeier
ITALY: Francesco Lombardi and M. Luisa Guerra
HUNGARY: Dr. Helga Süli-Vargha
IRELAND: Gloria Proby
JAPAN: Hanako Suzuki
THE NETHERLANDS: Henny Berisha
NEW ZEALAND: Jon & Valerie Johnson
SOUTH AFRICA: Markus van Vuuren
SPAIN: Karina Villar, M.D.
SWITZERLAND: Erika Trutmann
Sheila Tepper, Development. Radio Producer, Los Angeles, California
Susan Warnick, R.N., Reisterstown, Maryland
Peggy Ann Graham, R.N., Warren, Michigan
Joyce Wilcox Graff, Brookline, Massachusetts
[Last updated
28 April, 2008
, JWG]
Further information is available from the VHL Family Alliance, info@vhl.org.
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