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Staff Current Directors Medical Advisors Medical Emeritus
International Affiliates Advisors Founders
Staff
Joyce Graff, Executive Director, Editor of the VHL Family Forum
Lisa Steindel, Director of Development
Ranjana Sharma, Research Services Coordinator
Mary Lou Linn, Member Services Coordinator
Robin Cochrane, Publications Coordinator
List of current Board of Directors
and Medical Advisory Board
and their affiliations
Other than staff, all persons named
on this page are volunteers, who receive no compensation for their services
to the VHL Family Alliance.
Board of Directors
Jeanne McCoy, Chairman of the Board, Junior League, Greenville, SC
Tom Rath, Vice-Chairman, Global Practice Leader, Gallup Organization,
Washington, D.C.
Camron King, California Wine Growers Association, Sacramento, CA
John Wallace, M.D., ER Physician, Manhattan Beach, CA
Michelle Ciesklak, Treasurer, accountant, Woodland Hills, CA
Altheada L. Johnson, retired dietitian, Brooklyn, NY (died May 2010)
Sunny Greene, Secretary of the Board, Career Counselor, Retired,
Falls Church, VA
Robert Kramer, DDS, dentist and professor of dentistry, Cave Creek, AZ
Thomas D. Rodenberg, Esq, attorney, Blue Springs, MO
Bill B. Scheitler, S&H Marketing, Remsen, IA
Medical Advisory Board
Debra L. Collins,
M.S., Division of Genetics, University of Kansas Med Center, Kansas
City, Kansas
Michael B. Gorin, M.D., Ophtlmology, University of California, Los Angeles, California
Eric Jonasch, M.D., Urologic Oncology, M.D. Anderson Cancer Center, Houston, Texas
Richard Alan Lewis,
M.D., Professor of Ophthalmology, Pediatrics, Medicine, and Molecular
and Human Genetics and Faculty Associate at the Huffington Center on
Aging, Baylor College of Medicine, Houston, Texas
John A. Libertino,
M.D., Chair, Institute of Urology, Lahey Clinic, Burlington, Massachusetts
Joseph Locala, M.D.,
Department of Psychiatry and Psychology, Cleveland Clinic Foundation,
Cleveland, Ohio
Eamonn R. Maher, M.D., F.R.C.P., Professor
of Medical Genetics, University of Birmingham, England
Ian McCutcheon, M.D., FRCSC, Neurosurgery, M.D. Anderson Cancer Center, Houston, Texas
Col. Scott McLean, M.D., Genetics, Lackland Air Force Base, Texas
Virginia V. Michels, M.D., Department of
Medical Genetics, Mayo Clinic, Rochester, Minnesota
Haring J. W. Nauta,
M.D., Ph.D., Chief of Neurosurgery, University of Texas Medical Branch,
Galveston, Texas
Hartmut P. H. Neumann, M.D., Department
of Nephrology, Albert-Ludwigs University, Freiburg, Germany
Edward H. Oldfield, M.D.,Surgical Neurology, University of Virginia
Stéphane
Richard, M.D., Neuro-Oncologie, Necker Hospital, Paris-Sud, France
Armand Rodriguez, M.D., Family Medicine,
Fort Lauderdale, Florida
Medical Emeritus
Lloyd M. Aiello, M.D.,
Chief, Beetham Eye Institute, Joslin Diabetes Center, Boston, Massachusetts
Yujen Edward Hsia,
M.D., Professor Emeritus, Department of Genetics, University of Hawaii,
Honolulu, Hawaii
Col. James M. Lamiell, M.D., Chief, Clinical
Investigation Regulatory Office, U.S. Army Medical Center and School,
Fort Sam Houston, Texas
R. Neil Schimke,
M.D., Dir. of Endocrinology, Metabolism & Genetics, University of
Kansas Med Center, Kansas City, Kansas
Robert B. Welch,
M.D., Chairman Emeritus, Department of Ophthalmology, Greater Baltimore
Med Center, Baltimore, Maryland
International Affiliates
Contact people are available in these and other countries; call for a referral
AUSTRALIA: Jennifer Kingston
BRAZIL: J. C. Casali da Rocha
BELGIUM: Chris Hendrickx
CANADA: Jill Shields
CHILE: Pierre Jacomet
DENMARK: Richard & Vibeke Harbud
ENGLAND: Mary Weetman
FRANCE: Gilles Brunet
GERMANY: Gerhard Alsmeier
ITALY: Francesco Lombardi and M. Luisa Guerra
HUNGARY: Dr. Helga Süli-Vargha
IRELAND: Gloria Proby
JAPAN: Hanako Suzuki
THE NETHERLANDS: Henny Berisha
NEW ZEALAND: Jon & Valerie Johnson
SOUTH AFRICA: Markus van Vuuren
SPAIN: Karina Villar, M.D.
SWITZERLAND: Erika Trutmann
Advisor
Sheila Tepper, Development. Radio Producer, Los Angeles, California
Founders
Susan Warnick, R.N., Reisterstown, Maryland
Peggy Ann Graham, R.N., Warren, Michigan
Joyce Wilcox Graff, Brookline, Massachusetts
[Last updated
19 July, 2010
, JWG]
Further information is available from the VHL Family Alliance, info@vhl.org.
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