Staff
Ilene Sussman, Executive Director
Joyce Graff, Wellness Director, Editor of the VHL Family Forum
Mary Lou Linn, Member Services Coordinator
Susan Milliken, Office Manager
Board of Directors
Jeanne McCoy, Chairman of the Board, Junior League, Greenville, SC
Tom Rath, Vice-Chairman, Global Practice Leader, Gallup Organization,
Washington, D.C.
Sunny Greene, Secretary of the Board, Career Counselor, Retired,
Falls Church, VA
Michelle Cieslak, Treasurer, accountant, Woodland Hills, CA
Fred Johnson, Retired/Software Consultant, Brooklyn, NY
Camron King, California Wine Growers Association, Sacramento, CA
Robert Kramer, DDS, dentist and professor of dentistry, Cave Creek, AZ
Jane McMahon Romanoff, Executive Recruiter, King of Prussia, PA
Sarah Nielsen, MSGC, Genetic counselor, University of Chicago, IL
Thomas D. Rodenberg, Esq, attorney, Blue Springs, MO
Bill B. Scheitler, S&H Marketing, Remsen, IA
Medical Advisory Board
Gennady Bratslavsky, M.D., Chair, Urology, Upstate Medical University, Syracuse, New York
Debra L. Collins,
M.S., Division of Genetics, University of Kansas Med Center, Kansas
City, Kansas
Karina Villar Gómez de las Heras, MD,
President of La Alianza de las Familias VHL, Ministry of Health and Social Welfare for
Castilla-LaMancha, Toledo, Spain
Michael B. Gorin, M.D., Ophtlmology, University of California, Los Angeles, California
Eric Jonasch, M.D., Urologic Oncology, M.D. Anderson Cancer Center, Houston, Texas
Richard Alan Lewis,
M.D., Professor of Ophthalmology, Pediatrics, Medicine, and Molecular
and Human Genetics and Faculty Associate at the Huffington Center on
Aging, Baylor College of Medicine, Houston, Texas
John A. Libertino,
M.D., Chair, Institute of Urology, Lahey Clinic, Burlington, Massachusetts
Steven K. Libutti, M.D., Director, Einstein-Montefiore Center for Cancer Care, New York, New York
Joseph Locala, M.D.,
Department of Psychiatry and Psychology, Cleveland Clinic Foundation,
Cleveland, Ohio
Eamonn R. Maher, M.D., F.R.C.P., Professor
of Medical Genetics, University of Birmingham, England
Ian McCutcheon, M.D., FRCSC, Neurosurgery, M.D. Anderson Cancer Center, Houston, Texas
Scott McLean, M.D., Genetics, San Antonio Genetics
Virginia V. Michels, M.D., Department of
Medical Genetics, Mayo Clinic, Rochester, Minnesota
Hartmut P. H. Neumann, M.D., Department
of Nephrology, Albert-Ludwigs University, Freiburg, Germany
Edward H. Oldfield, M.D.,Surgical Neurology, University of Virginia
Stéphane
Richard, M.D., Neuro-Oncologie, Necker Hospital, Paris-Sud, France
Armand Rodriguez, M.D., Family Medicine,
Fort Lauderdale, Florida
Medical Emeritus
Lloyd M. Aiello, M.D.,
Chief, Beetham Eye Institute, Joslin Diabetes Center, Boston, Massachusetts
Yujen Edward Hsia,
M.D., Professor Emeritus, Department of Genetics, University of Hawaii,
Honolulu, Hawaii
Col. James M. Lamiell, M.D., Chief, Clinical
Investigation Regulatory Office, U.S. Army Medical Center and School,
Fort Sam Houston, Texas
Haring J. W. Nauta,
M.D., Ph.D., Chief of Neurosurgery, University of Texas Medical Branch,
Galveston, Texas
R. Neil Schimke,
M.D., Dir. of Endocrinology, Metabolism & Genetics, University of
Kansas Med Center, Kansas City, Kansas
Robert B. Welch,
M.D., Chairman Emeritus, Department of Ophthalmology, Greater Baltimore
Med Center, Baltimore, Maryland
International Affiliates
Contact people are available in these and other countries; call for a referral
ARGENTINA: Carlos Fredes
AUSTRALIA: Jennifer Kingston
BRAZIL: Jamile Mansour
BELGIUM: Dirk Werbrouck
CANADA: Jill Shields
DENMARK:Susanne Bøgger Hansen and Jens Strandgaard
ENGLAND: Mary Weetman
FRANCE: Edith Lassus-Laurent
GERMANY: Gerhard Alsmeier
ITALY: Francesco Lombardi and M. Luisa Guerra
HUNGARY: Dr. Helga Süli-Vargha
IRELAND: Gloria Proby
JAPAN: Ms. Shinkai
THE NETHERLANDS: Henny Berisha
NEW ZEALAND: Jon & Valerie Johnson
SOUTH AFRICA: Markus van Vuuren
SPAIN: Karina Villar, M.D.
SWITZERLAND: Erika Trutmann
Advisor
Sheila Tepper, Development. Radio Producer, Los Angeles, California
Founders
Susan Warnick, R.N., Reisterstown, Maryland
Peggy Ann Graham, R.N., Warren, Michigan
Joyce Wilcox Graff, Brookline, Massachusetts
[Last updated
15 January, 2012
, JWG]
Further information is available from the VHL Family Alliance, info@vhl.org.
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