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Families, Friends, Physicians, & Researchers working together
to improve diagnosis, treatment, & quality of life for people affected by von Hippel-Lindau disease.

Clinical Care Centers

For information about the CCC program, please click here

 

Australia: Prince of Wales Hospital, Sydney. Janet Tyler, Genetic Counsellor, Hereditary Cancer Clinic. Tel: +61 2 9382 2551; Fax: +61 (2) 9382 2588; E-mail: janet.tyler@sesiahs.health.nsw.gov.au

Canada: Memorial University of Newfoundland, St. John's, NF. Dr. Jane Green, Medical Genetics, Tel: +1 (709) 777-6242; Fax: +1 (709) 777-7317; E-mail: janeg@mun.ca

England:

University of Birmingham Hospital, Edgbaston, Birmingham. Professor Eamonn R. Maher; Med. Genetics, Tel: +44 121 627 2741; Fax: +44 121 627-2618; E-mail: E.R.Maher@bham.ac.uk

St. Mary's Hospital, Hathersage Rd, Manchester M13 0JH.  Dr. Fiona Lalloo, Consultant Clinical Geneticist, and Mrs. Carol Giblin, Genetic Counsellor, Department of Clinical Genetics.  Tel: +44 (0)161 2766322; Fax: +44 (0)161 2766145. carol.giblin@cmmc.nhs.uk

Churchill Hospital, Oxford. Peter Risby, Cancer Genetics CNS, Tel: +44 (1865) 226019; Fax: +44 (1865) 226011; E-mail: peter.risby@orh.nhs.uk

France: Necker Hospital and Kremlin-Bicêtre Hospital, Paris. Stéphane Richard, M.D., Oncogenetics, Tel/Fax: +33 (1) 49 59 67 28; E-mail: stephane.richard@kb.u-psud.fr

Germany: Albert-Ludwigs University Hospital, Freiberg im Breisgau. Hartmut P. Neumann, M.D., Nephrology, Tel: +49 (761) 270-3363; Fax: +49 (761) 270-3778; E-mail: neumann@mm41.ukl.uni-freiburg.de

Israel: Hadassah University Hospital, Jerusalem. Dr. David Gross, Endocrinology, Tel: +972 (2) 677-7648; Fax: +972 (2) 643-7940

Japan: Kochi Medical School, Nan-koku Kochi.  Dr. Taro Shuin, Urology, Tel: +81 888 80 2402; Fax: +81 888 80 2404

The Netherlands: University Hospital Utrecht. Dr. Cornelius J. M. Lips, Dept. of Internal Medicine, Tel: +31 30 250-9111; Fax: +31 30 252-3741; E-mail: c.j.m.lips@digd.azu.nl; Website: http://www.kankerpatient.nl/vhl/  

Poland: Pomeranian Academy of Medicine, Szczecin. Dr. Karol Krzystolik, Dept Genetics, Tel: +48 (91) 4828 450; Fax: +48 (91) 4828 450; E-mail: poland@vhl.org

United States:

Illinois: Northwestern Memorial Hospital, Northwestern University, Chicago, IL. Taya J. Fallen, MS, Genetic Counselor., or Felicia Steverson, Administrative Assistant. Tel: +1 (312) 695-0320; E-mail: tayafallen@md.northwestern.edu

Iowa: University of Iowa Hospitals & Clinics, Iowa City, IA. Ms. Ann Muilenburg, RN, MA, Tel: +1 (319) 356-2674; Fax: +1 (319) 356-3347

Kansas: University of Kansas Medical Center, Kansas City, KS. Debra L. Collins, M.S., Genetics, Tel: +1 (913) 588-6022 option 5; E-mail: dcollins@kumc.edu

Maryland: Johns Hopkins Hospital, Baltimore, MD. Gretchen Oswald, M.S. or Amanda Bergenen, M.S., Tel: +1 (410) 955-3071; Fax: +1 (410) 614-9246

Massachusetts:

Massachusetts General Hospital, Boston, MA. VHL Clinic, Gayun Chan-Smutko, M.S., Tel:+1  617-724-1971; Fax: 617-726-9418; E-mail: gchansmutko@partners.org  Website: http://cancer.mgh.harvard.edu/cancer_riskanalysis_vhl.htm

Lahey Clinic Medical Center, Burlington, MA. Michelle Lavery, NP, Tel: +1 (781) 744-2827; Fax: +1 (781) 564-5429; E-mail: Michelle.A.Lavery@lahey.org

Michigan:

University of Michigan Medical Center, Ann Arbor, MI. Wendy Uhlmann, M.S., Genetics, Tel: +1 (734) 763-2532; Fax: +1 (734) 763-7672; E-mail: wuhlmann@umich.edu

Minnesota: Mayo Clinic, Rochester, MN. Mary Kelly, Clinic coordinator, +1 (507) 284-8198; Fax: 507-284-0161.  Mayo's Neurosurgery department website is http://www.mayoclinic.org/neurosurgery-rst/index.html

New York:

Columbia University-New York Presbyterian Hospital, New York City. Dr. Wendy Chung, Clinical Genetics, Tel: +1 (212) 851-5313; Fax: +1 (212) 851-5306; E-mail: wkc15@columbia.edu

Memorial Sloan Kettering Cancer Center, New York City, Dr. Jonathan Coleman, Urology. Tel: 646-422-4432, Fax: 212-988-0768. Ask for Dr. Coleman or Cassandre Mills, R.N. Click here to send e-mail.

North Carolina:

Wake Forest University, Bowman Gray Medical School, Winston-Salem, NC. Stephen Tatter, MD, PhD, Neurosurgery, Tel: +1 (336) 716-9933; Fax: +1 (336) 716-3065; E-mail: statter@wfubmc.edu

Ohio: Cleveland Clinic Foundation, Cleveland, OH. Amy Shealy, Genetic Counselor, Genomic Medicine Institute, Tel: +1 (216) 445-1251 or 1-800-223-2273 ext. 51251, E-mail: shealya@ccf.org

Pennsylvania:

Hospital of the University of Pennsylvania, Philadelphia, PA. Barbara Bernhardt, Genetic Counselor, Tel: +1 (215) 662-4740; Fax: +1 (215) 614-2098. Their website is http://www.uphs.upenn.edu/penngen/

University of Pittsburgh, Pittsburgh, PA. Darcy Thull, MS, Genetic Counselor, Tel: (800) 454-8156 or (412) 641-1466; Fax: (412) 641-1132; E-mail: dthull@mail.magee.edu

Tennessee: Vanderbilt University Medical Center, Nashville, TN. Susan Caro or Kate McReynolds, Family Cancer Risk Service, Tel: +1 (615) 343-0738 or toll free 877.688.7555; Fax: +1 (615) 343-1819; E-mail: susan.caro@Vanderbilt.Edu Website: http://www.vicc.org/fcrs/

Texas: 

Baylor College of Medicine and Texas Children's Hospital, Houston, TX.  Katie S. Plunkett, M.S., Genetic Counselor, Tel: +1-832-822-4295, Fax: +1-832-825-4294.  

M.D.Anderson Cancer Center, Houston, TX.  Molly Daniels, M.S., Genetic Counselor, Tel: +1-713-745-7391.  E-mail: ccg@mdanderson.org Their website is: http://www.mdanderson.org/diseases/vhl/

Washington: University of Washington, Seattle, WA. Robin L. Bennett, MS, Medical Genetics, Tel: +1 (206) 598-4030; Fax: +1 (206) 616-2414

[clinics2 - Last updated 17-Sep-2007 by JWG, ]


VHL Family Alliance
2001 Beacon St, Suite 208, Boston, MA 02135-7787 USA
Tel: +1 800 767-4845 or +1 617 277-5667; Fax: +1 858-712-8712
E-mail: info@vhl.org


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