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With the amazing advances in genetic research today, there is more hope than ever for a treatment or cure for VHL. Your support and tax-deductible donations can help "Untie the Knot" of VHL! |
- Your donation(s) will help fund continued research for a cure that will help people with hereditary VHL, as well as 70% of all people with kidney cancer.
- Your donations will sustain educational and support programs to improve diagnosis, treatment, and quality of life for individuals and families affected by VHL.
- For your family's health, manage nutrition and stress, and be watchful for early symptoms of VHL and other diseases.
About the VHL Family Alliance
We are dedicated to improving the diagnosis, treatment and quality of life for individuals and families affected by VHL.
We provide an international network of family support groups sharing information in person, on the phone, through the quarterly newsletter and internet discussion groups. We assemble and distribute medically reviewed educational information to the families, to health care professionals, and the general public.
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Having von Hippel-Lindau can be a frustrating mix of fear and confusion. Fear of a cancer-causing disease diagnosis. Confusion because there is little information available about VHL and few health professionals familiar with it. That's the void the VHL Family Alliance is here to fill. To empower, assist and advise VHL patients and their health care providers with information about diagnosis, treatment and screenings -- along with funding research for a cure.
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Mail to: VHLFA, 2001 Beacon St, Suite 208, Boston, MA 02135-7787 USA
or Canadian VHLFA, 4227 Hamilton Rd., Dorchester, ON, N0L 1G3
Enclosed is my tax-deductible gift to support:
__ VHLFA __ Research only
__ $____ __ $5000 __ $1000 __ $500 __ $100 __ $50 __ $____
(Please make checks payable to VHL Family Alliance)
Name: ____________________________________________________
Address: __________________________________________________
City: ____________________________ State: ___________________
Zip/Postcode: ___________________ Country: __________________
Tel: _____________________________ Fax: _____________________
E-mail: ___________________________________________________
__ Send quarterly newsletter __ Audio version needed
__ My employer will match my donation. I have enclosed the form.
I am a __ Person with VHL __ Family member __ Friend __ Sponsor
__ Health professional __________________________(specialty)
Please charge my __ Visa __ Master Card __ Amex
Card number _______________________ Exp Date _________
Name as it appears on the card ___________________________
__ One time payment of $ ____________________________
or Monthly charges: __ Twelve monthly payments of $______ each
VHLFA is a non-profit corporation in the U.S. ID 04-3180414
and a registered charity in Canada
My donation is __ In Honor of... __ In Memory of ...
____________________________________________
Please send an acknowledgment card to ...
Name: ____________________________________________________
Address: __________________________________________________
__________________________________________________________
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Remember VHLFA in your Will
You can give hope to millions of people worldwide with VHL, kidney cancer, and other tumors by extending your support of VHL Family Alliance programs beyond your lifetime. Whether your legacy is large or small, you can support our programs of education, service, and research by remembering VHLFA in your will
To make a bequest of cash or other property to VHLFA, please set up a meeting with your attorney and provide him or her with the following information:
VHL Family Alliance, Inc., a non-profit corporation organized under the laws of Massachusetts
2001 Beacon St, Suite 208, Boston, MA 02135-7787 USA
Federal tax ID 04-3180414
A bequest to VHLFA is fully deductible for estate tax purposes. In addition, remembering VHLFA In your will is an important and personal way of providing hope to people with von Hippel-Lindau disease for generations to come. You may wish to learn about other gift opportunities by consulting with your attorney, accountant, or tax estate planning specialist, or simply write to Director of Development, VHLFA, 2001 Beacon St, Suite 208, Boston, MA 02135-7787 USA, info@vhl.org
Information is available on Charitable Remainder Trusts and other bequests. |
R.S. -- Oregon
"... my doctor recommended immediate removal of my kidneys. Then I called the VHL Family Alliance help line. They gave me experts to contact, facts instead of opinions, and renewed hope. Three years later, I still have normal kidney function. And my doctor understands VHL now, too."
A.W. -- Michigan
"The shock of sitting there, being told I had cancer caused by a genetic disease, was devastating. But even worse was my doctor telling me in the same breath that he had no patients or experience with Von Hippel-Lindau."
J.D. -- Pennsylvania
"...worst of all is knowing that your children have this disease. Watching them learn to live with the constant testing and occasional surgery really hurts... it hurts to know I gave it to them. The VHL Family Alliance understands and has helped me cope."
S.G. -- Colorado
"Had I not found the VHL Family Alliance on the internet, I'd probably still be trying to find out what's wrong with me and my family. Nobody seems to know much about VHL."
L.C. -- California
"With every issue of the VHLFA newsletter, I'm uplifted by the personal stories of hope, and encouraged by all of the research they're involved in. Hopefully a cure is just around the corner!"
2001 Beacon St, Suite 208, Boston, MA 02135-7787 USA
All donations are tax-deductible under US IRS rules, ID 04-3180414
Patient Support: (800) 767-4VHL or +1-617-277-5667
E-mail: Info@vhl.org
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