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Families, Friends, Physicians, & Researchers working together
to improve diagnosis, treatment, & quality of life for people affected by von Hippel-Lindau disease.

Peggy Graham, Warren, Michigan

Founder, Co-Chair 1993-95

I am a nurse in maternal and child health at the Bi-County Community Hospital in Warren, Michigan.  I am a lactation consultant and coordinate teaching programs for new mothers, and the nurses who work with them.  I am also a busy mother and grandmother. 

My family has had a crash course in VHL, beginning only five years ago.  Since then, in addition to adrenal involvement, we have had brain and spinal aspects as well.   Our adrenal story is in this issue.  It is difficult managing the health care of so many people all at the same time, but somehow we manage it all!  We are delighted to have found so many other wonderful families.  Together, we will overcome VHL

Originally published December 1993, VHLFF 1:4.

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