Skip The Left Navigation

Home

 

Site Search

 

Press Kit

 

Support Groups

 

Online Discussion

 

Membership

 

Newsletter

 

Tissue Bank

 

In the News

 

Board Members

 

VHL Links

 

Privacy Policy

 

Online Shopping

 

Contact Us

 

 

 

 

 

 

 

Altheada Johnson, Brooklyn, New York

 

Director, 1994-2000, 2001-present
Chairman of the Board, 1996-2000
Secretary of the Board, 2001-present

 

Altheada and Fred Johnson  (click to read their story)

 

Altheada Johnson

Altheada Johnson was elected by the Board in 1996 to be Chairman of the Board. This is the highest honor the Board can confer on one of its members. Altheada has played an essential role in fund-raising and public relations. She is a member of the Membership Committee, and focuses on Outreach to the medically underserved. She is a tireless letter writer, and has appeared on agendas at meetings on Minorities and Cancer (D.C.); Women and Genetics (Illinois), and she will present a poster at a conference in Alabama in September. Altheada is our in-house consultant on nutrition, and heads an informal alternative medicine interest group. She is in touch with doctors and researchers on the topics of pain management and pre-implantation testing.

 

Her husband Fred organized and supervised a computer bulletin board, the precursor to our Web service on the internet. He supervised our online service and internet account 1994-1998.

 

Following a sabbatical year's leave from the Board she returned in 2001 as Secretary of the Board, and a member of the Executive Committee.