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Available Publications

 

E-mail: vhlpub@vhl.org

 

 

Dear Friend,

Thank you for contacting the VHL Family Alliance. We hope the information you have gained from our website on von Hippel-Lindau disease is helpful to you, and that you will join the Alliance. We will be happy to send you a new member packet containing the VHL Handbook and various brochures. 

 

Every new member receives the publications marked with an asterick (*) listed below along with the most current copy of the VHL Family Forum.The VHL Handbook, Your Family Health Tree and several brochures may be available in Spanish, French, Italian, Polish or Portuguese. Please contact the publications office for availability.  For information in Japanese, please see the website of our affiliate in Japan, available from the homepage.

 

The information service of the VHL Family Alliance is supported by generous contributions from the members, physicians and the public. Your donation will help defray the cost of printing, postage, and handling, and insure that this service continues to be available to all who need it.

 

You may order additional publications by filling out this order form and mailing or faxing it directly to our publication office. These modest prices cover our cost of printing and postage only. Your tax deductible contribution will help us reach more families with VHL.

 

 

Quantity - Member cost
Non-Member Cost
Total
_______Brochures, "What is VHL?"(*) 25 for $2.00 $4.00 $_______
_______Brochures, "VHL Not so Rare"(*) 25 for $2.00 $4.00 $_______
_______Brochures, "VHL - Puzzle"(*) 25 for $2.00 $4.00 $_______
_______Your Family Health Tree(*)  $2.00 $4.00 $_______
_______VHL Handbook(*) $3.00 $4.00 $_______
Books, Video, Audio
_______ How Are You? Managing Your Medical Journey, by P. Foote $17.00 $_______
_______ Sacred Process, poems by Karen Koenig $15.00 $_______
_______ VHL Family Alliance Cookbook $12.00 $_______
_______ VHL Video (specify __US/NTSC format or __European/PAL format) $20.00 $_______
_______Pierre Jacomet CD, piano solo, J.S. Bach, Goldberg Variations $12.00 $_______
_______Pierre Jacomet audio tape, piano selections $10.00 $_______
Shirts:
VHL Family Alliance: Tee-shirts
#____Small #____Medium #____Large #____ X-Large XXL_____
$15.00 $_______

Sweat Shirts
#____Small #____Medium #____Large #____ X-Large XXL____

$25.00 $_______
Collared Pull-over Golf Shirts, Assorted colors
#____Small #____Medium #____Large #____ X-Large XXL____
Contact publications office or 800 line for colors available
$25.00 $_______
Membership:

Individual family and friends - (one address)

$25.00 $_______

Professional (MD, RN, etc.)

$35.00 $_______

Corporate/Faculty, And Special Friends

$100.00 $_______

Sustaining Members

$250.00 $_______

Lindau Society

$1,000.00 $_______
Additional Tax Deductible Contribution to help continue the work of the VHL Family Alliance $_______
International Postage: Prices includes U.S./Canadian postage.  For postage outside North America, please add another $3 per book or shirt, and 25% of newsletter and brochure charges to cover international postage.   Thank you. $3 per book
25% of other publications

TOTAL ENCLOSED

$______
 
Please enclose this page along with the orderform to include your shipping instructions and payment information.

 

Thank You!