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Fifth International Symposium on
von Hippel-Lindau Disease
6-8 June, 2002
Praglia Abbey, Bresseo
University of Padua/Padova
Padua, Italy - Padova, Italia
Organized by
Department of Medical and Surgical Sciences, University of Padua
and the VHL Family Alliance
Invitation
Dear Friends and Colleagues:
It is with great pleasure that we invite you to join us at the Fifth International Symposium on von Hippel-Lindau, to be held in Praglia Abbey in Bresseo, a suburb of Padua, Italy, 6-8 June 2002.
This is an opportunity for the scientific community to share ideas and collaborate to accelerate VHL research and clinical care. There will also be an opportunity for exchange of opinions and experience among physicians and families. The fight against VHL requires the highest collaboration and involvement of all the community.
Other goals of the meeting will be the upgrading of the international VHL mutation and phenotype-genotype databases, the delivering of new guidelines for clinical management of VHL patients and the strengthening of relationships among VHL patients and physicians in Europe. Since the discovery of the gene for VHL in 1993, four Symposia have helped to accelerate progress in research and in the clinical understanding of VHL. We look forward to your participation in the Padua meeting, where we will look at ways of moving VHL care into a new era of less invasive management and more effective preventive medicine.
-- Giuseppe Opocher, M.D., University of Padua
Organization of the Meeting
Technical Language: A Symposium is intended as a forum for physicians to share information with one another. Three tracks are suggested, depending on the attendee’s background in genetics, medicine, and VHL.
Track 1: Full program. Assumes some familarity with molecular biology. Includes genetic research, genotype/phenotype alignment, and clinical management.
Track 2: Physicians unfamiliar with molecular genetics may wish to begin with Track II on Friday morning. Includes genotype/phenotype alignment studies from several countries, and clinical management practices and advances. A brief summary of the Basic Science Day will be presented on Saturday.
Track 3: Family members are encouraged to begin with Track 3 on Friday morning. Includes all clinical management sessions, with information on insurance and DNA testing. A high-level summary of the Basic Science Day will be presented on Saturday.
Thursday, June 6, 2002
Registration begins at 2 pm.
Meetings 3pm-8 pm followed by a buffet dinner
Friday June 7, 2002
8:30 am - 5 pm including Lunch
5 pm - tour of Praglia Abbey
8:30 pm - dinner at the Air Museum
Saturday June 8, 2002
8:30 am – 5:00 pm
includes lunch
Sunday, June 9, 2002
- Family day for VHL Families
- Leadership meetings for Europe
- contact Joyce Graff or Gerhard Alsmeier at the Hotel San Lorenzo in Abano Terme for details
General Information
Purpose: A symposium for the sharing of clinical and research findings on von Hippel-Lindau disease. The course will cover diagnosis and treatment of a hereditary cancer syndrome, genotype/phenotype analysis for determining cost-effective screening for each family, and advances toward treatment options based on angiogenesis inhibitors and other breakthrough modalities.
Charges: The registration charge listed includes continental breakfasts, lunches, and, dinner Friday evening, course syllabus, and other amenities involved in creating a rewarding learning experience. Cancellations prior to the program will be refunded less a $25 administration fee.
Venue: Praglia Abbey in Bresseo, a suburb of Padua, Italy
Dates: June 6-8, 2002 (Optional family day Sunday June 9)
Scientific Communications: Please send all communications concerning presentations, posters, and abstracts to Joyce Graff, Editor, VHL Family Alliance, editor@vhl.org
Language: The language of the meeting will be English. Questions may be posed in Italian, Spanish, or French.
Registration: The number of participants is limited to 300. It is recommended that you register as soon as possible. Registration fees include the Symposium, proceedings book, lunches, welcome reception, and one dinner Friday evening.
Travel and Hotel Information
Hotel accommodations: Hotel reservations may be made in Padua or Abano Terme. Shuttle bus service will be provided for attendees from these two towns. A limited number of rooms are available on site at Praglia Abbey. Precedence will be given to people with mobility disabilities. Please contact info@vhl.org to inquire about onsite rooms.
Dr. Opocher has recommended that we not stay in Padua itself. There is a gay pride demonstration planned in Padua during the time of the meeting, and he expects a lot of traffic. Abano Terme, nearby on the other side of the Abbey, is a lovely little spa town, with hot springs baths and a very relaxed atmosphere. The Abbey is 5 minutes drive from Abano Terme, or 20 minutes from Padua.
Airport: Venice International airport is about 40 km (30-40 minutes) away from Padua and Abano Terme. It is possible to make reservations for a shuttle from and to the Venice airport at a price that is approximately $20 USD per person. The two main shuttle services are:
Other airports are farther away, but are manageable by train. Rental cars are very expensive, with nearly 100% tax added on. Train and bus travel is very realistic.
- Verona, 100 km from Padua
- Bologna, 115 km
- Bergamo, 190 km
- Milano Linate 220 km
- Milano Malpensa, 260 km
Arriving at one of these airports, a shuttle bus will drive you to the railway station where you have a train connection to Padua every hour or less. You will be in Padua within 2 hours.
Connections by train from Pisa are more awkward, with trains about every 2 hours or more, and a change in Firenze and sometimes also in Bologna.
Please Note:
- **All attendees must make their own hotel arrangements**
- * A limited number of partial scholarships are available.
Registration
Choose Internet or Fax Registration:
Click Here to Register on the Internet using our Secure Server
or Click Here for the
Registration form to send via Fax or Postal Mail
Conference Presidents
F.Mantero, F.Pagano, F.Zacchello
Scientific Committee Members
Giuseppe Opocher, M.D., University of Padua, Chair
Joyce Wilcox Graff, M.A., Brookline, Massachusetts, USA
Frederick J. Hes, M.D., Ph.D., Appeldoorn, the Netherlands
Eamonn R. Maher, M.D., F.R., Birmingham, England
Alessandra Murgia, Ph.D., Padua, Italy
Hartmut P. H. Neumann, M.D., Freiburg, Germany
Stéphane Richard, M.D., Ph.D., Paris, France
Catherine Stolle, Ph.D., Philadelphia, Pennsylvania, USA
Bert Zbar, M.D., Frederick, Maryland
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