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Some links related to Von Hippel-Lindau Disease
- The Genetic Alliance,
of which we are a member
- Family Voices,
of which we are a member
- National Coalition
for Cancer Survivorship, of which we are a member
- National Organization
for Rare Disorders, of which we are a full member
- Cancer Care, a non-profit
organization providing free progressional support services
to people with all cancers and their loved ones.
- Coalition
for Urologic Research and Education (CURE) , of which
we are a founding member, a new lobbying group whose purpose
is to increase funding at NIH for urologic concerns including
kidney cancer. Their website has been updated to include
the latest information on urology-focused research and the
Congressional Appropriations process.
- Dana Farber Harvard Cancer Center Renal Cancer SPORE, a multi-year multi-million dollar program to bring innovations in kidney cancer treatment from the lab to the clinic.
- American Brain Tumor Association
- Artificial Eye Information
and Patient Support Page
- National Brain Tumor
Foundation
- The Healing Exchange
BRAIN TRUST, Inc.,
support for people with mild brain injury or recovering from
brain tumor surgery
- The Dana Alliance for Brain
Research, whose Brain Awareness Week initiative helps
to highlight the need for research on the brain.
- Kidney Cancer
Association
- Neuro-oncology
Links (Brain and Spine Tumors)
- Help
in Stopping Smoking
- Online
Mendelian Inheritance in Man
- The Job Accommodation Network (JAN)
- 918 Chestnut Ridge Road, Ste 1, Morgantown, WV 26506-6080
E-mail: tsaab@wvu.edu
Voice/TDD: US +1 (800) 526-7234, Canada +1 (800) 526-2262
Fax: +1 (304) 293-5407
JAN on the Web: http://janweb.icdi.wvu.edu
Health Insurance information, U.S.
[Last edited
06-Jan-2006
] |
