VHL Links

• The Genetic Alliance, of which we are a member
• Family Voices, of which we are a member
• National Coalition for Cancer Survivorship, of which we are a member
• National Organization for Rare Disorders, of which we are a full member
• Cancer Care, a non-profit organization providing free progressional support services to people with all cancers and their loved ones.
• Coalition for Urologic Research and Education (CURE) , of which we are a founding member, a new lobbying group whose purpose is to increase funding at NIH for urologic concerns including kidney cancer.  Their website has been updated to include the latest information on urology-focused research and the Congressional Appropriations process.
• Dana Farber Harvard Cancer Center Renal Cancer SPORE, a multi-year multi-million dollar program to bring innovations in kidney cancer treatment from the lab to the clinic.
  
• American Brain Tumor Association
• Artificial Eye Information and Patient Support Page
• National Brain Tumor Foundation
• The Healing Exchange BRAIN TRUST, Inc., support for people with mild brain injury or recovering from brain tumor surgery
• The Dana Alliance for Brain Research, whose Brain Awareness Week initiative helps to highlight the need for research on the brain.  
• Kidney Cancer Association
• Neuro-oncology Links (Brain and Spine Tumors)
• Help in Stopping Smoking
• Online Mendelian Inheritance in Man
• The Birt-Hogg-Dubé Family Alliance and The Myrovlytis Trust

• U.S. National Institutes of Health
  • National Cancer Institute research on VHL and other hereditary kidney cancers
    • Frederick Cancer Research Center, whose team was instrumental in cloning the VHL gene
  • The National Eye Institute participates in VHL research under the general guidance of the VHL clinical research program run by the National Cancer Institute
  • The National Institute for Neurologic Disorders and Stroke also participates in VHL research on brain and spinal cord involvement.
  • NIH Office of Rare Diseases

Job Accommodation, Keeping Your Job

• The Job Accommodation Network (JAN)

918 Chestnut Ridge Road, Ste 1, Morgantown, WV 26506-6080
E-mail: tsaab@wvu.edu
Voice/TDD: US +1 (800) 526-7234, Canada +1 (800) 526-2262
Fax: +1 (304) 293-5407
JAN on the Web: http://janweb.icdi.wvu.edu

• The Americans with Disabilities Act: Publications
• Americans with Disabilities Act Information
• Governmnent benefits

Health Insurance information, U.S.

• Families USA
• Health Insurance protections by state: http://www.healthinsuranceinfo.net/
• Institute for Child Health Policy
• HCFA CHIP news http://www.hhs.gov/news/press/1997pres/970910b.html
• Child Health Insurance Policy (CHIP) overview

[Last edited 02-Sep-2009 ]