Professional and Patient/Provider Meetings re VHL

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Reports on prior VHL meetings

Forthcoming Meetings

Click on the link in the calendar above.

Online discussions are conducted all the time in English, German, Spanish, French, Japanese, and Scandinavian languages.  Click here for instructions on joining a group.

Chat. Chats have not been very well attended, so we have tended to focus on the Online Discussions instead. Chats are scheduled periodically at the will of the group.  Once you have joined the online discussion, any forthcoming chats will be announced there, or in the meetings schedule above.

• Click here for the schedule of Chats
• Click here for the registration information for the English language online discussion vhl.clinicahealth.com
• Reports from previous chat sessions with scheduled speakers:
  • The Emotional Roller-Coaster, with Dr. Gary Wood, a clinical psychologist who has VHL
  • The Family, with Dr. Gary Wood
  • How VHL influences sexual feelings in a relationship, with Dr. Ron DeMayo, sexologist, and Dr. Gary Wood
  • Issues for Adoptees with VHL, with Ann Hughes, a reunited birthmother, author of Soul Connection, a birthmother's healing journey.
  • Getting over Brain Surgery, with Diane Roberts Stoler, author of Coping with Mild Traumatic Brain Injury.
  • Neck and Back Pain, with Deb Hogan, registered physical therapist
  • Pros and Cons of DNA Testing, with Joyce Graff
  • Dealing with Denial, with Dr. Gary Wood, a clinical psychologist who has VHL
  • Open Chat with Maria, Gale, and Joyce: pain, anti-depressants, preventive screening, DNA testing, "fuzzy" answers, mosaicism
  • Walking out of Worry, with Deb Hogan, Massachusetts

Reports on Prior VHL Meetings

• Report from the Roskilde meeting, 2008
• Report from the Boston meeting, 2007
• Report from the Kochi, Japan meeting, 2004
• Report from the Nashville regional meeting, 2003
• Report from the Cleveland Conference, 2002
• Report from the Padua Symposium, 2002
• Report from the Palo Alto Conference, 2001
• Report from the Minnesota Symposium, 2000
  • Consensus Report from the Symposium
• Report from the Atlanta Conference, 1999
• Report from the Paris Symposium, September 1998
• Report from the Seattle Conference, 1998
• Report from the Dutch Symposium on MEN and VHL, 1997
  • Using Pre-implantation Genetic Testing, Opinions from the MEN/VHL Conference
• Report from the Bethesda Conference, 1997
• Report from the 2nd International VHL Symposium, Honolulu, June 17-21, 1996
• Report from the Boston Conference, 1995
• Report from the 1st International VHL Symposium, Freiburg, Germany, May 1994
• Report from the Kansas City Conference, 1994

Index to Symposia, with reports and abstracts of presentations:

• 1994 Freiburg, Germany - Albert Ludwings University
• 1996 Honolulu, Hawaii - University of Hawaii
• 1998 Paris, France - Necker Hospital
• 2000 Rochester, Minnesota - Mayo Clinic
• 2002 Padua, Italy - University of Padua
• 2004 Kochi, Japan - Kochi Medical School
• 2006 London, Ontario, Canada - Univ of Western Ontario and the Robarts Research Institute

Video Recordings

• 2007 Houston Conference
• 2007 Boston Annual Meeting
• 2008 Orlando Annual Meeting