Bethesda Holiday Inn, Bethesda, Maryland
$109 per night, single or double Hotel reservations must be made by March 28, 1997
to get this special conference rate.
Welcome Reception 6 pm Friday, May 2
Conference runs 8 AM Saturday, May 3 through 3 pm Sunday, May 4, 1997
Optional events:
Focus Conference on Stereotactic Radiosurgery & Hemangioblastoma, Friday, 12-5 PM
Meeting of the VHLFA Board Members and Chapter Chairs, Friday, 9-12 AM
A discount is available off any published rate on US Air for our conference.
For reservations, call your local travel agent or Jacki Hunsberger, CTC, a VHLFA member
Odyssey Travel, Box 840, Skippack, PA 19474
+1 800 972-3178 9-5 Eastern time
Fax: +1 610 222-0520
Evening phone: +1 610 489-0896
It's That Time Again!!!
Plans for the '97 VHLFA Patient/Provider Conference are under way. We are very excited that this conference will be held in Bethesda, Maryland, home of the National Institutes of Health and about 15 minutes from our nation's Capitol, with many sights to behold. If you've never been to Washington, D.C., plan to attend the 1997 conference, which will be held May 2-4, 1997.
Our preliminary plans for the conference include
Treatment/management of the major manifestations of von Hippel-Lindau: angiomas of the eye, hemangioblastomas of the brain and spinal cord, endolymphatic sac tumors, pheochromocytomas, and renal cell carcinoma (kidney tumors).
Insurance issues
The effects of VHL on children in the family, how a child deals with having a parent or sibling with VHL, and with the fact that there is a genetic disorder in the family
Alternative/complementary cancer therapies
On Friday, May 2, 12-5 pm, Dr. Edward Oldfield of the National Institutes of Neurological Disorders and stroke will host a Focus Conference on Stereotactic Radiosurgery (SR) for medical professionals. The day will focus on this method of treating brain tumors, and the pros and cons of using SR to treat the hemangioblastomas of VHL. Dr. Oldfield will report on the focus conference at the patient/provider conference.
Please plan to join us in Bethesda, May 2-4, 1997, Friday evening through Sunday at 3 pm, for the 1997 VHL Patient/Provider Conference. You may want to plan some extra time to enjoy our nation's Capitol at night. Nothing is more spectacular. If it's history you love, there's no better plan than the many museums and historic buildings of D.C., featuring the Smithsonian, the National Gallery of Art, the National Archives, the Library of Congress, the U.S. Capitol, the White House, and Ford's Theater to name a few. Everyone should experience Washington, D.C., in their lifetimes, here's your chance!
Join us for the '97 conference. We hope to see you there!
