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Teamwork for Health
- in von Hippel-Lindau
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- Families and Health Professionals
Working Together to make VHL stand for
a "Very Happy Life"
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June 4-6, 1999
The Southern Conference Center in The Sheraton Colony Square Hotel
Atlanta, Georgia
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Doctors!
CME Credits 14.5 |
Agenda - Faculty - Sign-up coupon - Brochure to print
- 1:00 Registration
- 2:00 Introductions
- Eva H. Logan, Conference Chair
- Joyce W. Graff, Co-Chair
- Peggy J. Marshall, Co-Chair
- 2:30 "VHL - Quest for a Cure"
- Peggy J. Marshall, Co-Chair
- 3:00 Public Relations
- Susan C. McGuire, Director
- 3:15 On the Appalachian Trail for VHL
- Joseph A. "Jay" Platt, USMC, retired
- 3:45 VHL Clinical Care Centers
- Joyce W. Graff, Co-Chair
- 4:00 Break
- 4:15 Clinical Evaluation and Molecular Genetic Diagnosis of VHL
- Gladys M, Glenn, M.D.
- 4:45 Audience Discussion
- Moderator: Barbara Redding, VHLFA Info Line
- 5:00 How Are You?
- Patricia Foote, Author
- 6:30 Dinner Provided
- Panel Discussion: VHL Patients and Spouses - "Coping with VHL", Don M., Vice-Chair
- Complementary Therapy - Gale Lugo, Florida Chapter Chair
Saturday, June 5, 1999
- 7:30 Breakfast Provided
- 8:30 Genetics
- Genetic Testing for VHL, Paul Fernhoff, M.D.
- DNA Testing Issues, Debra L. Collins, M.S.
- Psychosocial, Ethical, and Legal Issues in Genetic testing for VHL, Angela Trepanier, M.S.
- 9:30 Genetics: Audience and Panel Discussion
- 9:45 Break
- 10:00 Neurology
- Brain/Spinal Hemangioblastomas, Edward H. Oldfield, M.D.
- Endolymphatic Sac Tumors, Daniel Choo, M.D.
- Radiosurgery and VHL - Present and Future, Dheerendra Prasad, M.D.
- 11:00 Neurology: Audience and Panel Discussion
- 11:15 Insurance and Legal Issues
- Thomas D. Rodenberg, Esq.
- 11:45 Insurance & Legal: Audience Discussion
- 12:00 Lunch Provided
- VHL Family Alliance Annual Meeting
- Presentation of Awards
- 1:00 Ophthalmology
- Ocular Manifestations of VHL Disease - Prevention and Treatment, Emily Y. Chew, M.D.
- Ocular Involvement in VHL, Hans E. Grossniklaus, M.D.
- 2:00 Ocular Prosthetics
- Robert A. Thomas, BCO, F.A.S.O.
- 2:45 Ocular - Audience Discussion
- 3:00 Break
- 3:15 Urology
- Renal Cell Carcinoma in VHL
- Hartmut Neumann, M.D.
- Manifestations in the Kidneys with
von Hippel-Lindau
- Walter Rayford, M.D.
- 4:15 Inherited Cancers of the Kidney
- Berton Zbar, M.D.
- 4:45 Urology - Audience and Panel Discussion
- 5:30 Dinner on your Own - Enjoy the Sights and Sounds of Atlanta
Sunday, June 6, 1999
- 7:30 Breakfast Provided
- 8:30 Spiritual Coping
- Pastor David Torres
- Pastor Michael Weeks
- 9:00 Endocrinology
- Pancreatic Lesions in VHL, Steven K. Libutti, M.D.
- Pheochromocytomas in VHL, McClellan Walther, M.D.
- 9:45 Audience and Panel Discussion
- 10:00 Break
- 10:15 Research - Hope for the Future
- Biology of the VHL Gene Product, Professor Robert D. Burk, M.D.
- Functional Analysis of the VHL Tumor Suppressor, James Gnarra. Ph.D.
- Evidence for a Stepwise Progression Model for VHL Tumorigenesis, Steven T. Lott, Ph.D.
- Clinical Anti-angiogenesis Research, Jeffrey Humphrey, M.D.
- Functions of the VHL Tumor Suppressor Protein, William Kaelin, M.D.
- 11:30 Audience and Panel Discussion
- 11:45 Meeting Summary
- Joyce W. Graff, Co-Chair
- Peggy J. Marshall, Co-Chair
- Louis J. Elsas II, M.D.
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Professor of Pediatrics and Biochemistry, Director, Division of Medical Genetics, Emory University School of Medicine
- Peggy J. Marshall
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Co-chair and Director of Information & Referral Services, VHL Family Alliance
- Eva Logan
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Chair, Georgia Chapter, VHL Family Alliance
- Robert D. Burk, M.D.
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Professor, Albert Einstein College of Medicine of Yeshiva University, Comprehensive Cancer Research Center, Bronx, New York
- Emily Y. Chew, M.D.
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National Eye Institute, National Institutes of Health
- Daniel Choo, M.D.
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National Institutes of Health, Bethesda, Maryland
- Debra L. Collins, M.S.
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Division of Genetics, University of Kansas Medical Center, Kansas City, Kansas
- Paul Fernhoff, M.D.
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Director Medical Genetics Laboratory
- Gladys M. Glenn, M.D.
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Medical Officer, Genetic Epidemiology Branch, Cancer Diagnostic Branch, and Clinical Associate, Surgery Branch, National Cancer Institute
- James R. Gnarra, Ph.D.
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Associate Professor, Louisiana State University Medical Center, New Orleans, Louisiana
- Joyce Wilcox Graff
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Co-Chair and Editor, VHL Family Alliance
- Hans E. Grossniklaus, M.D.
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Professor, Department of Ophthalmology
- Jeffrey Humphrey, M.D.
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Bristol-Myers Squibb Pharmaceutical Research Institute, Woodbridge, Connecticut
- William Kaelin, Jr., M.D.
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Dana Farber Cancer Research Institute, Boston, Massachusetts
- Steven K. Libutti, M.D.
- Senior Investigator, Surgery Branch, National Cancer Institute, Bethesda, Maryland, and Assistant Professor of Surgery, Uniformed Services University
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- Steven T. Lott, Ph.D.
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M. D. Anderson Cancer Center, Houston, Texas
- Hartmut P.H. Neumann, M.D.
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Department of Nephrology, Albert-Ludwigs University Freiburg, Germany
- Edward H. Oldfield, M.D.
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Chief, Surgical Neurology Branch,
National Institutes of Health, Bethesda, Maryland
- Joseph A. Platt, USMC, retired
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Jacksonville, North Carolina
- Dheerendra Prasad, M.D.
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Assistant Professor of Neurosurgery, University of Virginia
- Walter Rayford, M.D.
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Urology Department, Louisiana State University Medical Center, New Orleans, Louisiana
- Thomas Rodenberg, Esq.
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Blue Springs, Missouri
- Robert A. Thomas, BCO, FASO
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Thomas Ocular Prosthetics Laboratories, Inc, Memphis, Tennessee
- Angela Trepanier, M.S.
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Genetic Counselor
- McClellan Walther, M.D.
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National Cancer Institute, National Institutes of Health
- Berton Zbar, M.D.
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Chief of the Laboratory of Immunobiology, National Cancer Institute, National Institutes of Health
TEAMWORK FOR HEALTH
June 4-6, 1999
Name _______________________________________
Address _____________________________________
City ________________________________________
State, Zip ____________________________________
Office phone _________________________________
Fax _________________________________________
E-mail address _______________________________
Specialty/Degree ______________________________
Social Security No. ____________________________ (needed if seeking CME credits only)
Special Needs _____________________________
___ I will attend the Friday dinner
___ A guest will accompany me (add $30)
| Registration prices: |
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| Individuals, if registered before May 10 |
$125 each |
| Individuals, after May 10, 1999 |
$145 each, $125 for accompanying spouse |
| Nurses, Doctors |
$145 |
| Doctors seeking CME credits |
$200 ($180 if paid by May 10) |
Make check payable to:
- VHL FAMILY ALLIANCE
Or pay by credit card (Complete form below)
___ Master Card ___ Visa
Expiration Date _____________________________
Card Number _______________________________
- Name _____________________________________
- (as it appears on card)
Signature __________________________________
___ Please send me information on other continuing medical education programs.
Detach and mail or fax to:
- VHL FAMILY ALLIANCE
- 2001 Beacon St, Suite 208
Boston, MA 02135-7787 USA
- Fax: 858-712-8712
- Tel: 617-277-5667
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