Hotel space has been reserved for the VHL meeting at the Marriott Burlington. Attendees should make their own reservations by calling the Marriott at 1 (800) 228-9290 or (781) 229-6565. The VHL conference rate is $79 per night for up to four people in one room, as long as reservations are made by October 10. CEU credits will be available for genetic counselors and nurses

It's a beautiful time of year in New England. Please join us for the conference, enjoy the travel in foliage season, and perhaps plan to take some time to enjoy Boston in the fall.

Presentations will feature physicians and researchers from the three Clinical Care Centers in Boston: Brigham & Women's, Lahey Clinic, Massachusetts General Hospital, and including Children's Hospital, Joslin Diabetes Center, and the Dana-Farber Cancer Research Institute.

KIDNEY SEGMENT: Dr. John Libertino, CEO of Lahey Clinic, will talk about recent advances in diagnosis and treatment of renal cell carcinoma, including 3-D imaging and a very new renal cell cancer vaccine, and transplantation. Dr. Peter Mueller of the Massachusetts General Hospital will tell us about radio frequency ablation (RFA), a less-invasive method of disabling a kidney tumor.

NEUROLOGY SEGMENT: How tumors of the eye, brain, and spinal cord develop, advances in diagnosis and treatment.

INSPIRATIONAL SONG: by Deb Hogan, from her new CD

RESEARCH SEGMENT: research advances, implications for prevention, drug discovery, and treatment, and clinical trials on controlling angiogenesis in VHL. Panelists are:

Dr. William Kaelin, Dana Farber Cancer Research Center
Dr. Othon Iliopoulos, Mass. General Hospital
Dr. Peter Wen, Brigham & Women's Hospital, head of the clinical trial

DNA TESTING - Gayun Chan and Kristen Shannon, genetic counselors from Mass. General

LIVING WITH VHL

VHL CONNECTIONS: learning from one another.

Registration. We are making every effort to keep costs down for these Regional meetings. The modest registration fee of $25 covers lunch and breaks on Saturday. Click here to register online or call 1-800-767-4845 ext 4 to register by phone.

Information is power, especially in living with VHL. The information you will gather from these presenters will help you maintain your health. The experience of hearing others tell their VHL story and learning from each other is not only touching, but empowering. Through these regional meetings you will make VHL Connections with other families, and with experts in the field.

Click here to register online, or call 617-277-5667 or 1-800-767-4845 ext. 4