A Regional Meeting of the VHL Family Alliance
will be held Saturday, June 4, 2005, 10 am - 4pm. Registration includes
lunch.
The meeting will be held in the Community
Conference Room at Lourdes Hospital in Binghamton. Cathy Clifford is planning
an exciting meeting for people from Buffalo to Northern Pennsylvania.
The focus will be on improving diagnosis, treatment, and quality of life
for people with VHL in the region.
For those who need overnight accommodations,
a block of rooms is being held at the Holiday Inn Arena, at the rate of
$82/night. Please call the hotel directly to make your hotel arrangements,
and tell them you are attending the VHLFA meeting. Be sure to book rooms
before May 4 to qualify for this rate.
The Holiday Inn Arena
8 Hawley St
Binghamton, NY 13905
(607) 722-1212
Joyce W. Graff,
Executive Director of the VHL Family Alliance, will be available to talk
about the Alliance, new news in VHL research, and news from our global
affiliates.
Melissa Savage, Genetic counseling graduate student from Pennsylvania,
will talk about her thesis project on VHL, and how you can help.
Further details will be posted
here as they become available, or write to Cathy us-nywest@vhl.org
The Program will include an opportunity for us just plain folks to share
experiences and stories.
Conference Registration is
$10 per person in advance, or $15 at the door. Registration includes lunch.