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FUTURE MEETINGS

 

4-6 September 2008
VHL Medical Symposium
Roskilde, Denmark

 

17-20 September 2008
2nd International
Symposium on
Pheochromocytoma
Cambridge, England, UK

 

20 September 2008
Meeting in Switzerland
Pfäffikon,, Switzerland

 

20 September 2008
Meeting in Austria
Linz, Austria

 

10-12 October 2008
German National Meeting
Hannover, Germany

 

Sandusky, Ohio
Fundraiser for VHL at
Cleveland Clinic
October 18, 2008

 

Houston, Texas
VHL Regional Meeting
November 8, 2008

 

Reports from Prior Meetings

 

Information Packet

 

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Houston Meeting

Saturday, November 8, 2008

9 am to 3 pm

 

 

Please join us!

 

M.D. Anderson Cancer Center
location to be announced

 

RSVP: Dr. Jonasch's office, (713) 563-7254

Chairman: Dr. Eric Jonasch, M.D. Anderson Cancer Center, Houston
VHLFA-Texas


Clenton Winford, VHLFA Chair, Texas
Michelle Black, Vice-Chair, Texas

Dr. Jonasch
Dr. Jonasch

 

Agenda:

 

We will have our next VHL Family Alliance Regional meeting on Saturday November 8th, 2008.  

Last year's event was a great success and patients and families tell me they are looking forward to the next meeting.

 

Tentative Agenda:

 

1. VHL:  What’s new in molecular biology?

2. Screening studies:  Are they risky?

3. How do the genetics rules impact VHL patients?

4. Endocrinology and VHL

5. Updates on minimally invasive procedures for renal masses.

6. Update on central nervous system management in VHL.

6. Clinical trials in VHL patients: What have we learnt so far?

 

Lunch

 

Patient forum:

 

Adjourn at 3PM.         


Please let me know what other topics you would like to see on the agenda.  

Thanks,

Eric.