Registration is $99 per person for the full day of meetings and food service (breakfast, lunch, and festive dinner to celebrate our birthday!) AND if you register before April 30, you get $20 off each registration (in other words, $79 + $59 instead of $99 +$79). WHAT A DEAL!

We encourage you to come with a spouse or significant other person, to make sure that your team is all on the same page! We are offering a discount for a second attendee from the same family -- take $20 off the second registration.

Please Note: Prices go up after April 30

We can hardly wait to see you!

Here is the DRAFT AGENDA

9 am	Welcome and Introduction
**
9:45	Dr. James Gnarra, University of Pittsburgh The State of VHL Research
10:15	Dr. Li-Ming Su, Shands Hospital of the University of Florida, Minimally Invasive Surgical Approaches to Kidney Tumors and Pheochromocytoma (Session chair: Dr. Eric Jonasch, M.D. Anderson Cancer Center, Houston
11	Break
11:15	Dr. Russell Lonser, U.S. National Institute on Neurological Disorders & Stroke Understanding the Natural History of VHL Tumors, and what this teaches us for treatment
12:15	Lunch
1:00	Ann Fonfa, Director, The Annie Appleseed Project Nutrition, Complementary and Alternative Therapies for cancer and tumor conditions
2:00	Dr. Gary L. Wood, Wood & Associates, Employee Assistance Programs Managing and thriving with VHL in the family - understanding and managing stress
2:45	Breakout sessions (concurrent) with professional facilitators provided by Wood & Associates of Tampa, Florida
	For adults with VHL: Dr. Gary L. Wood, clinical psychologist who has VHL
	For spouses, significant others, caregivers, and friends: Dr. Pat Alexander, doctor of mental health counseling
	For children with and without VHL: Dr. Steve Russell, clinical psychologist
4:15	Reporting back from the breakouts
5:00	Rest before dinner
6:00	Dinner, Annual Meeting and Birthday Bash! Including a Professional Clown with a degree from Clown College!

** Dr. Mark Hughes, who had originally committed to come and speak with us about PGD, has been invited to gtive one of the keynote addresses at an international conference on PGD in Barcelona on the same day. We are still looking for an alternate speaker on this topic. If we are able to confirm a speaker, we would put them into this slot, change Dr. Gnarra's presentation to the dinnertime, and move everything else on this agenda 15 minutes later. We're still trying!