Saturday, June 27, 2009, 8 AM to 5 PM, Hyatt Regency Orange County
The 16th Annual Meeting of the VHL Family Alliance will be held at the Hyatt Regency Orange County in Anaheim, California, near Disneyland and other theme parks.
Presentations will include:
Advances in treatment of eye lesions
Advances in diagnosis and treatment of pheochromocytoma
Latest news on nutrition and cancer prevention, including a trial you can help with, to evaluate a new food product that may inhibit tumor growth!
News of a new clinical trial -- more specific, fewer side effects
Announcement of two new clinical care centers -- in California and Florida
*** See the CONTESTS for International VHL Day that will be announced at this event, one of which has as a prize a free trip to this conference! Click here for details
Registration
Registration includes a day of fascinating meeting, lunch, and snacks throughout the day. This is information you can't get any other way, and fellowship with other families with VHL.
Make your own hotel reservations by May 15 to get our special conference rate of $139 for a standard room, for up to four adults in the room. Call +1-714-750-1234 or go to http://orangecounty.hyatt.com
Nutritionist, about maintaining and enhancing your core stamina
10:00 AM
Break
10:20 AM
Michael Gorin, M.D., Ophthalmology, University of California, Los Angeles
Advances in treatments for hemangiomas of the retina
11:20 AM
James Gnarra, Ph.D., University of Pittsburgh, and VHLFA Director of Research
State of VHL Research
12:20 PM
Lunch and meeting
brief business meeting over lunch
- announce UCLA as a CCC
- awards
- formal election of board members
- announcement of research grants
1:30 PM
Melissa Kruger, author and editor, teacher and Mom
Presentation of Kids’ Book
1:40 PM
Mystery Diagnosis video
Discussion at each commercial break (24 min video plus discussion)
1. What would you say to her if she were your friend?
2. What are your guesses as to what is ailing her? What suggestions would you make if she were your friend?
2:40 PM
Michael Yeh, M.D., Endocrinology and Surgery, University of California, Los Angeles
Advances in diagnosis & Treatment of Pheochromocytoma
3:40 PM
Break
4:00 PM
Allan J. Pantuck, MD, MS, FACS
Pomegranate polyphenols and kidney cancer
Convention attendees can receive great discounts to Disney Theme Parks. Just show your convention badges to the Disney Parks Office in the Hyatt!
Rates are as follows:
1 day 1 park pass, $65
1 day park hopper pass, $90
Twilight pass from 4pm until close, $48
2 day, $143
*We will also be raffling off 4 one day hopper passes at the convention so be sure to purchase a raffle ticket for a chance to win these wonderful items along with other great prizes!
