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Patient/Provider Meeting 2010

St. Louis, Missouri

 

St. Louis Arch
The VHLFA Annual 2010 Patient/Provider
meeting will be held...

Saturday June 19, 2010

8:30am - 5pm

St. Louis Union Station Marriott

www.UnionStationMarriott.com

314-621-6262 or 800-228-9290

(mention that you are part of the VHLFA meeting and get a discount)

Register one person $85 (prices go up after May 27)
Register two in one family $155 (prices go up after May 27)
Register for the St. Louis Cardinals game Friday night! $40 (while supplies last)
 

Come meet and talk with other people with VHL and their families. Learn, hug, and find out the magic of meeting someone else who really does know what you're going through! There will be lots of time to mingle and chat, in addition to an outstanding program:

 

Confirmed speakers include:

  • Dr. Teresa Deshields, Barnes Hospital and Washington University, dealing with the stresses and strains of living with chronic illness
  • Dr. Rachel Giles, University of Utrecht, the Netherlands, presenting her research on VHL in zebrafish
  • Dr. James Gnarra, VHLFA Research Director, University of Pittsburgh, with an update on the state of VHL research
  • Dr. Adam Kibel, , Barnes Hospital and Washington University, Kidney issues in VHL
  • Dr. Ram Srinivasan, Urologic Oncology, U.S. National Institutes of Health, with an update on clinical trials for VHL
  • Amy Riter, Miss Wheelchair Ohio, will lead a discussion among attendees

Sign up now! Prices include meeting space, handouts, lunch with the group, and snacks during the day. There will be an optional welcome get-together Friday evening.

 

Register one person $85 (prices go up after May 27)

Register two in one family $155 (prices go up after May 27)

Register for the St. Louis Cardinals game Friday night! $40 (while supplies last)

 

We can hardly wait to see you!!