Come meet and talk with other people with VHL and their families. Learn, hug, and find out the magic of meeting someone else who really does know what you're going through! There will be lots of time to mingle and chat, in addition to an outstanding program:
Confirmed speakers include:
Dr. Teresa Deshields, Barnes Hospital and Washington University, dealing with the stresses and strains of living with chronic illness
Dr. Rachel Giles, University of Utrecht, the Netherlands, presenting her research on VHL in zebrafish
Dr. James Gnarra, VHLFA Research Director, University of Pittsburgh, with an update on the state of VHL research
Dr. Adam Kibel, , Barnes Hospital and Washington University, Kidney issues in VHL
Dr. Ram Srinivasan, Urologic Oncology, U.S. National Institutes of Health, with an update on clinical trials for VHL
Amy Riter, Miss Wheelchair Ohio, will lead a discussion among attendees
Sign up now! Prices include meeting space, handouts, lunch with the group, and snacks during the day. There will be an optional welcome get-together Friday evening.