Please Join Us for this year's national meeting:

Educate and Empower Yourself!
Saturday, June 18, 2011
Houston, Texas

The VHL Family Alliance and the M.D. Anderson Cancer Center invite you to join us for the 2011 national meeting of the VHLFA with speakers from M.D. Anderson and the National Institutes of Health. Speakers will share the latest advances in diagnosis and treatment for the tumors that occur in VHL.

Video Invitation from Dr. Eric Jonasch

It takes teamwork among families, physicians, and researchers to manage a complex condition like VHL. Patients, family members, and their health care professionals are invited to attend and dialogue with the experts about the factors that go into decision-making about treatment for VHL.

M.D. Anderson, Cancer Prevention Building

1155 Pressler Street, 8th floor
Houston, Texas

welcome reception the night before

9-5 including lunch and breaks

Click here to register now

Agenda:

Draft agenda:

• Dr. Scott McLean, San Antonio Genetics, How to Housetrain your VHL Genetic Test
• Dr. Eric Jonasch, Urologic Oncology MDACC, on the status of investigation toward a drug to help with VHL, including two new trials expected in 2011.
• Dr. Ian McCutcheon, MDACC, Advances in treatment for hemangioblastomas
• Dr. H. Jeffrey Kim, Georgetown University Medical Center and NIH, Advances in diagnosis and treatment of Endolymphatic Sac Tumors (ELST)
• Advances in treatment for kidney tumors, including RFA, cryo, and robotic surgery -- strengths and limitations of each
• Dr. Dan Gombos, MDACC, Advances in treatment of retinal tumors
• Dr. Adiaha Spinks-Franklin, Texas Children's Hospital, Coping and managing stress
• Dr. Steven Waguespack, MDACC, Endocrinology - Pancreas and adrenals
• Jeanne McCoy, Chairman of the Board of VHLFA, Annual Meeting of VHLFA

Please plan to arrive the night before so that you can meet the speakers and attendees in an informal setting in the evening, and so that we can begin promptly in the morning.

Cost is:

$80 per person

$150 for two people

$99 per night for hotel (attendees make their own hotel arrangements)

Scholarships are available. To learn more contact Joyce Graff at wellness@vhl.org

 

Click here to register now

 

Hotel accommodations:

A block of rooms has been reserved for the VHL meeting at the Marriott Hotel, Texas Medical Center. Attendees should make their own hotel arrangements. One room for up to four people will be $99 per night. Click the link, or phone 1-713-796-0080 or toll-free 1-888 236 2427. Be sure to mention that you are attending the VHL meeting, or give them group code GUOGUOA.