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FUTURE MEETINGS

 

Schedule of Webinars

 

28-29 August 2008
Play about VHL brain tumor
Providence, RI

 

4-6 September 2008
VHL Medical Symposium
Roskilde, Denmark

 

17-20 September 2008
2nd International
Symposium on
Pheochromocytoma
Cambridge, England, UK

 

20 September 2008
Meeting in Switzerland
Pfäffikon, Switzerland

 

20 September 2008
Meeting in Austria
Linz, Austria

 

10-12 October 2008
German National Meeting
Hannover, Germany

 

Sandusky, Ohio
Fundraiser for VHL at
Cleveland Clinic
October 18, 2008

 

Houston, Texas
VHL Regional Meeting
November 8, 2008

 

Reports from Prior Meetings

 

Information Packet

 

Support Groups

 

Online Discussion

 

VHL Links

 

Newsletter

 

Contact Us

 

 

 

 

 

 

 

Specifications for Ordering Audio or Video tapes from prior conferences:

 


Enclose this sheet with the order form

 

VHL Family Alliance, 2001 Beacon St, Suite 208, Boston, MA 02135-7787 USA

_____ 1997 Bethesda Conference audio tapes (details follow)

        Please specify which tape numbers you want.

        __________________________________________________________    

 

_____ 1996 Hawaii Conference audio tapes (details follow)

        Please specify which tape numbers you want.

        __________________________________________________________

 

_____ 1995 Boston Conference audio tapes (12 tapes & album) @ $60/set

or $7.50 per tape, as follows:
(1) Brain & spinal (2 tapes = $15)
(2) Stereotactic Radiosurgery (1 tapes = $7.50)
(3) Eye (1 tape = $7.50)
(4) Kidney & Adrenals (2 tapes = $15)
(5) Inspiration & Meditation (1 tape = $7.50)
(6) Mapping the Gene (2 tapes = $15)
(7) DNA Testing: How & Why (1 tape = $7.50)
(8) DNA Risks & Issues (1 tape = $7.50)
(9) Cost-Effectiveness, Best Care (1 tape = $7.50)

_____ 1994 Kansas City Conference audio tapes(7 tapes & album) @ $40

 

 

Conference Audio Tapes - Bethesda, June 1997

 

- #1 Focus conference on stereotactic radiosurgery (4 tapes) - $32 $ __________

- #2 Research and VHL (2 tapes) - $16 $ __________

- #3 Clinical evaluation, kidney, pancreas, adrenal - (2 tapes) - $16 $ __________

- #4 Children and VHL (1 tape) - $8 $ __________

- #5 Sunday Meditation (1 tape) - $8 $ __________

- #6 Central Nervous System (2 tapes) - $16 $ __________

- #7 ELST (1 tape) - $8 $ __________

- #8 Eye lesions (1 tape) - $8 $ __________

- #9 Insurance and genetic disorders - $8 $ __________

 

Conference Audio Tapes - Hawaii Conference, 1996 (see also video tapes below)

 

$7 each audio tape 

Audio tape:   [Session Number] Speaker - Title

- Tape A1, [Intro] Hsia - Introductory remarks; [101] Lamiell - History of VHL

- A2 [102] Neumann - VHL: progress, problems, prospects.

- A3 [103] Graff - VHL: consumer concerns, needs, hopes; [104] Schmidt - Nursing assessment in cancer.

- A4 [105] Seto-Donlon - Breast cancer screening; [106] Coggins - Nursing management in cancer.

- A5 [202] Hsia - Alternate medicine; [203] Hoffman - Life and living.

- A6 [204] McCarthy - Burnout: rekindling the flame; [205] J Hill - Keep laughing to keep healthy

- A7 [206] K Hill - Komen Kids: support when parents are ill; [207] Hoffman - Family Coping; [208] Brumblay - Talking about Cancer

- A8 [209] Zbar - Cancer in Families

- A9 [301] Grimbert - Pregnancy in VHL disease; [302] Hirata - One case: Hemorrhage of a Spinal Cord Tumor
in a Pregnant Woman with VHL; [303] Hirata - Cancer and Pregnancy; [304]Merz - Establishing a Registry.

- A10 [305] Collins - Screening complexities and costs: insurance, privacy, and confidentiality; [306] Glenn - Screening, diagnosis, monitoring in VHL

- A11 [308] Foerster & Kreusel - Experimental treatments for advanced retinal angiomas (part 1)

- A12 Foerster & Kreusel (part 2); [309] Glenn - Diagnostic Imaging in VHL

- A13 [401] Shuin - Germline mutations in the VHL in Japan; [402] Hes - Genotype/phenotype correlation, Holland; [403] Kjeldsen - VHL Disease in Denmark; [404] Giroud - Genomic analysis in VHL in France.

- A14 [405] Novick - Kidney cancer & kidney failure in VHL; [406] Neumann - Lesions of endocrine organs in VHL

- A15 [407] Lips - VHL RCC in Holland; [408] Chauveau - Renal involvement in VHL, France; [409] Shinohara - Nephron-sparing operation, RCC; [410] Schmidt - Canadian family with hereditary RCC

- A16 [411] Scheremet - Hemangioblastomas of the CNS

- A17 [412] Glenn - Renal cell carcinoma: genetics; [413] Kaelin - Prospects for new anti-cancer drugs (part 1)

- A18 [413] Kaelin (part 2); [501] Kaelin - Functional analysis of the VHL protein.

- A19 [502] Richard - Pathology of hB and ELST; [503] Brauch -Somatic VHL mutations,clear cell RCC.

- A20 [504] Béroud - Sporadic RCC and the VHL database; [505] Decker - Mutational analysis of sporadic RCC; [506] Kanno - Mutational analysis of CNS hB; [507] Chamberlin - Transcript elongation; [508] Stackhouse - Phosphorylation by casein kinase

- A21 [509] Kley - Characterization of the VHL gene, mice; [510] Zbar - Summary

 

Conference Video Tapes - Hawaii Conference, 1996 (see also audio tapes above)

 

$15 each video tape

   Video tape: [Session Number] Speaker - Title

[Note: Video Tapes 1 & 2 are not available due to technical difficulties]

- Tape V3 [201] Torres - Spiritual Coping; [202] Hsia - Alternate medicine; [203] Hoffman - Life and living.

- V4 [204] McCarthy - Burnout: rekindling the flame; [205] J Hill - Keep laughing to keep healthy; [206] K Hill - Komen Kids: support when parents are ill

- V5 [207] Hoffman - Family Coping; V5 [208] Brumblay - Talking about Cancer; V5-6 [209] Zbar - Cancer in Families (part 1)

- V6 [209] Zbar (part 2); [301] Grimbert - Pregnancy in VHL disease; [302] Hirata - One case: Hemorrhage of a Spinal Cord Tumor in a Pregnant Woman with VHL; V6 [303] Hirata - Cancer and Pregnancy; V6 [304]Merz - Establishing a Registry.

- V7 [305] Collins - Screening complexities and costs: insurance, privacy, and confidentiality; [306] Glenn - Screening, diagnosis, monitoring in VHL

- V8 [308] Foerster & Kreusel - Experimental treatments for advanced retinal angiomas; [309] Glenn - Diagnostic Imaging in VHL (part 1)

- V9 [309] Glenn (part 2); [401] Shuin - Germline mutations in the VHL in Japan; [402] Hes - Genotype/phenotype correlation, Holland; [403] Kjeldsen - VHL Disease in Denmark; [404] Giroud - Genomic analysis in VHL in France; V9 [405] Novick - Kidney cancer & kidney failure in VHL

- V10 [406] Neumann - Lesions of endocrine organs in VHL; Neumann - Violin selections, with J. Nishi, pianist; [407] Lips - VHL RCC in Holland

- V11 [408] Chauveau - Renal involvement in VHL, France; [409] Shinohara - Nephron-sparing operation, RCC; [410] Schmidt - Canadian family with hereditary RCC; [411] Scheremet - Hemangioblastomas of the CNS

- V12 [412] Glenn - Renal cell carcinoma: genetics; [413] Kaelin - Prospects for new anti-cancer drugs (part 1)

- V13 [413] Kaelin (part 2); [501] Kaelin - Functional analysis of the VHL protein; [502] Richard - Pathology of hB and ELST.

- V14 [503] Brauch -Somatic VHL mutations,clear cell RCC; [504] Béroud - Sporadic RCC and the VHL database;  [505] Decker - Mutational analysis of sporadic RCC; [506] Kanno - Mutational analysis of CNS hB

- V15 [507] Chamberlin - Transcript elongation; [508] Stackhouse - Phosphorylation by casein kinase; [509] Kley - Characterization of the VHL gene, mice.

- V16 [510] Zbar - Summary; Neumann, violin, Torres preaching, touring Kauai

 

Enclose this sheet with your ordering form