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VHL Family Alliance, 2001 Beacon St, Suite 208, Boston, MA 02135-7787 USA
_____ 1997 Bethesda Conference audio tapes (details follow)
Please specify which tape numbers you want.
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_____ 1996 Hawaii Conference audio tapes (details follow)
Please specify which tape numbers you want.
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_____ 1995 Boston Conference audio tapes (12 tapes & album) @ $60/set
or $7.50 per tape, as follows:
(1) Brain & spinal (2 tapes = $15)
(2) Stereotactic Radiosurgery (1 tapes = $7.50)
(3) Eye (1 tape = $7.50)
(4) Kidney & Adrenals (2 tapes = $15)
(5) Inspiration & Meditation (1 tape = $7.50)
(6) Mapping the Gene (2 tapes = $15)
(7) DNA Testing: How & Why (1 tape = $7.50)
(8) DNA Risks & Issues (1 tape = $7.50)
(9) Cost-Effectiveness, Best Care (1 tape = $7.50)
_____ 1994 Kansas City Conference audio tapes(7 tapes & album) @ $40
Conference Audio Tapes - Bethesda, June 1997
- #1 Focus conference on stereotactic radiosurgery (4 tapes) - $32 $ __________
- #2 Research and VHL (2 tapes) - $16 $ __________
- #3 Clinical evaluation, kidney, pancreas, adrenal - (2 tapes) - $16 $ __________
- #4 Children and VHL (1 tape) - $8 $ __________
- #5 Sunday Meditation (1 tape) - $8 $ __________
- #6 Central Nervous System (2 tapes) - $16 $ __________
- #7 ELST (1 tape) - $8 $ __________
- #8 Eye lesions (1 tape) - $8 $ __________
- #9 Insurance and genetic disorders - $8 $ __________
Conference Audio Tapes - Hawaii Conference, 1996 (see also video tapes below)
$7 each audio tape
Audio tape: [Session Number] Speaker - Title
- Tape A1, [Intro] Hsia - Introductory remarks; [101] Lamiell - History of VHL
- A2 [102] Neumann - VHL: progress, problems, prospects.
- A3 [103] Graff - VHL: consumer concerns, needs, hopes; [104] Schmidt - Nursing assessment in cancer.
- A4 [105] Seto-Donlon - Breast cancer screening; [106] Coggins - Nursing management in cancer.
- A5 [202] Hsia - Alternate medicine; [203] Hoffman - Life and living.
- A6 [204] McCarthy - Burnout: rekindling the flame; [205] J Hill - Keep laughing to keep healthy
- A7 [206] K Hill - Komen Kids: support when parents are ill; [207] Hoffman - Family Coping; [208] Brumblay - Talking about Cancer
- A8 [209] Zbar - Cancer in Families
- A9 [301] Grimbert - Pregnancy in VHL disease; [302] Hirata - One case: Hemorrhage of a Spinal Cord Tumor
in a Pregnant Woman with VHL; [303] Hirata - Cancer and Pregnancy; [304]Merz - Establishing a Registry.
- A10 [305] Collins - Screening complexities and costs: insurance, privacy, and confidentiality; [306] Glenn - Screening, diagnosis, monitoring in VHL
- A11 [308] Foerster & Kreusel - Experimental treatments for advanced
retinal angiomas (part 1)
- A12 Foerster & Kreusel (part 2); [309] Glenn - Diagnostic Imaging in VHL
- A13 [401] Shuin - Germline mutations in the VHL in Japan; [402] Hes - Genotype/phenotype correlation, Holland; [403] Kjeldsen - VHL Disease in Denmark; [404] Giroud - Genomic analysis in VHL in France.
- A14 [405] Novick - Kidney cancer & kidney failure in VHL; [406] Neumann - Lesions of endocrine organs in VHL
- A15 [407] Lips - VHL RCC in Holland; [408] Chauveau - Renal involvement in VHL, France; [409] Shinohara - Nephron-sparing operation, RCC; [410] Schmidt - Canadian family with hereditary RCC
- A16 [411] Scheremet - Hemangioblastomas of the CNS
- A17 [412] Glenn - Renal cell carcinoma: genetics; [413] Kaelin - Prospects for new anti-cancer drugs (part 1)
- A18 [413] Kaelin (part 2); [501] Kaelin - Functional analysis of the VHL protein.
- A19 [502] Richard - Pathology of hB and ELST; [503] Brauch -Somatic VHL mutations,clear cell RCC.
-
A20 [504] Béroud - Sporadic RCC and the VHL database; [505]
Decker - Mutational analysis of sporadic RCC; [506] Kanno - Mutational
analysis of CNS hB; [507] Chamberlin - Transcript elongation; [508] Stackhouse
- Phosphorylation by casein kinase
- A21 [509] Kley - Characterization of the VHL gene, mice; [510] Zbar - Summary
Conference Video Tapes - Hawaii Conference, 1996 (see also audio tapes above)
$15 each video tape
Video tape: [Session Number] Speaker - Title
[Note: Video Tapes 1 & 2 are not available due to technical difficulties]
- Tape V3 [201] Torres - Spiritual Coping; [202] Hsia - Alternate medicine; [203] Hoffman - Life and living.
- V4 [204] McCarthy - Burnout: rekindling the flame; [205] J Hill - Keep laughing to keep healthy; [206] K Hill - Komen Kids: support when parents are ill
- V5 [207] Hoffman - Family Coping; V5 [208] Brumblay - Talking about Cancer; V5-6 [209] Zbar - Cancer in Families (part 1)
- V6 [209] Zbar (part 2); [301] Grimbert - Pregnancy in VHL disease; [302] Hirata - One case: Hemorrhage of a Spinal Cord Tumor in a Pregnant Woman with VHL; V6 [303] Hirata - Cancer and Pregnancy; V6 [304]Merz - Establishing a Registry.
- V7 [305] Collins - Screening complexities and costs: insurance, privacy, and confidentiality; [306] Glenn - Screening, diagnosis, monitoring in VHL
- V8 [308] Foerster & Kreusel - Experimental treatments for advanced retinal angiomas; [309] Glenn - Diagnostic Imaging in VHL (part 1)
- V9 [309] Glenn (part 2); [401] Shuin - Germline mutations in the VHL in Japan; [402] Hes - Genotype/phenotype correlation, Holland; [403] Kjeldsen - VHL Disease in Denmark; [404] Giroud - Genomic analysis in VHL in France; V9 [405] Novick - Kidney cancer & kidney failure in VHL
- V10 [406] Neumann - Lesions of endocrine organs in VHL; Neumann - Violin selections, with J. Nishi, pianist; [407] Lips - VHL RCC in Holland
- V11 [408] Chauveau - Renal involvement in VHL, France; [409] Shinohara - Nephron-sparing operation, RCC; [410] Schmidt - Canadian family with hereditary RCC; [411] Scheremet - Hemangioblastomas of the CNS
- V12 [412] Glenn - Renal cell carcinoma: genetics; [413] Kaelin - Prospects for new anti-cancer drugs (part 1)
- V13 [413] Kaelin (part 2); [501] Kaelin - Functional analysis of the VHL protein; [502] Richard - Pathology of hB and ELST.
-
V14 [503] Brauch -Somatic VHL mutations,clear cell RCC; [504] Béroud
- Sporadic RCC and the VHL database; [505] Decker - Mutational analysis
of sporadic RCC; [506] Kanno - Mutational analysis of CNS hB
- V15 [507] Chamberlin - Transcript elongation; [508] Stackhouse - Phosphorylation by casein kinase; [509] Kley - Characterization of the VHL gene, mice.
- V16 [510] Zbar - Summary; Neumann, violin, Torres preaching, touring Kauai
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