Newsletter 1993

March - June - September - December

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VHL Family Forum: ISSN 1066-4130 Volume 1, Number 1

March 1993 Download a printable copy of this issue

• Welcome!

• What is VHL?

• Families under Stress

• Dr. Arvid Lindau, 1892-1958

• Tracking Down the VHL Gene

• A Brief Key to Basic Genetics

• Why so many errors in our DNA?

• How Genes Work

• Finding Genetic Services

• Be a Founding Member!

• Many Thanks to those who helped compile this founding issue of the VHL Family Forum

• The Podium is yours . . . Here's your chance to learn and share about VHL.  The VHL Family Forum is waiting to hear from you!

  • Send in your story ideas, or submit an article about yourself or a favorite topic to the editor

  • Send in your private questions, or requests for more information

VHL Family Forum: ISSN 1066-4130 Volume 1, Number 2,

June 1993 Download a printable copy of this issue

• VHL Tumor Suppressor Gene Found!

  • Framing, additions, and deletions in genetics

• Dr. Eugen von Hippel, 1867-1938

• The Secret, by Lois E., Minnesota

• Preventive Maintenance, by David T., Hawaii

• Keeping Healthy Kidneys

• Organ Donation Saves Lives

• Ask the Experts:

  • Screening Children for VHL

  • VHL and Smoking

  • Families from Germany

• Ask the Family

  • When to tell your boyfriend or girlfriend about VHL?

  • Applying to college

• Resources: Cosmetics and Wig Care, Air Travel

• Teamwork, by Joanne B., New Jersey

• Alliance News

VHL Family Forum: ISSN 1066-4130 Volume 1, Number 3,

September 1993 Download a printable copy of this issue

• The Art of Conscious Living by Jon Kabat-Zinn, Ph.D.

• Quote from Members

• The Brain/Body Connection, by Adam H., New York

• Be Optimistic! by Ken and Hazel M., Cambridgeshire, England

• Resources:

  • Diet, Nutrition, and Cancer Prevention

  • Participation in Genetic Research Studies

• Paying the Bills, by Lee-Anne B., Connecticut, and Joyce Graff

• Ask the Experts

  • Controlling Panic Attacks

  • About the Pancreas

• Barn-Raising is Self-Help

• Ask the Family

  • Telling a child

  • Telling a prospective mate

  • Talking to a friend

• Dealing with Brain Tumors, by Susan Warnick, R.N., Maryland

• PAC-Man Surgery, by Patti K., California

• Ask the Experts: Brain tumors promoted by impact?

• Alliance News, Mississippi chapter started

VHL Family Forum: ISSN 1066-4130 Volume 1, Number 4,

December 1993 Download a printable copy of this issue

• VHL Disease in France, by Dr. Stéphane Richard

• Soothe the Body, Heal the Mind, Jim and Jay Sicard, Florida

• From the Sidelines, by Don M., Mississippi

• Resources:

  • What you Need to Know about VHL

  • Candlelighters

  • Starlight Foundation

  • Brain Tumor support network

  • American Brain Tumor Association

• The Many Masks of Adrenal Involvement, by Peggy Graham, R.N.

• Health Care Reform, U.S.A.

• Introducing the Board of Directors, 1993

• Alliance News