Welcome!

VHL Family Forum: ISSN 1066-4130 Volume 1, Number 1 March 1993
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Be a Founding Member!
Many Thanks to those who helped compile this founding issue of the VHL Family Forum
The Podium is yours . . . Here's your chance to learn and share about VHL. The VHL Family Forum is waiting to hear from you!
- Send in your story ideas, or submit an article about yourself or a favorite topic to the editor
- Send in your private questions, or requests for more information

It is with great joy that we publish the first issue of VHL Family Forum, the newsletter of the newly forming VHL Family Alliance.

The purpose of this Alliance, and of this newsletter, is to bring us all together and benefit from the collective energy — the synergy — of our collective knowledge and cooperative action.

The most important thing that we can give each other here is the power of knowing that we are not alone. Together we can support each other, share our anxieties and our triumphs, and let each other know that we care.

Living with VHL, each of us has learned lessons about VHL, about our health, and about life. By sharing that information, we can help each other, and help the medical community to solve this puzzle.

This is your organization. We need you to help us shape it to meet your needs, to benefit from your experience. Please let us know what you want to hear, what you want to learn, what you are willing to share. If each of us contributes just a small amount of time and funds, we can change the world for ourselves and our children.

-- Joyce Wilcox Graff, Editor

as published in March 1993, VHLFF 1:1