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Finding Genetic Services

VHL Family Forum: ISSN 1066-4130 Volume 1, Number 1 March 1993
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  • Many Thanks to those who helped compile this founding issue of the VHL Family Forum
  • The Podium is yours . . . Here's your chance to learn and share about VHL.  The VHL Family Forum is waiting to hear from you!
    • Send in your story ideas, or submit an article about yourself or a favorite topic to the editor
    • Send in your private questions, or requests for more information

Where to look:

 

Consult with your physician or health care provider about a genetic consultation.

 

Call your local major medical center or community hospital. Ask for Obstetrics or Pediatrics. Genetic Services are frequently divisions of these departments.

 

Contact your state department of health. Ask for genetic services.

 

Contact the National Society of Genetic Counselors for a direct referral to a genetic counselor. Please note: The NSGC office does not maintain or disseminate information about specific genetic disorders, but they can refer you to genetic services in your local area.

 

Write to: National Society of Genetic Counselors, 233 Canterbury Drive, Wallingford, PA 19086.

 

How to prepare for the visit:

 

Bring information about your family history and important medical records.

 

Plan to spend one to two hours at your first visit. Additional visits may be necessary to complete the evaluation.

 

Check with your insurance carrier prior to your visit. A growing number of companies now cover genetic services.

 

See the VHLFA booklet, Your Family Health Tree, available on request.

 

as published in March 1993, VHLFF 1:1