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Quotes from Members
"I had no idea there was such interest and so many are affected with VHL. My experiences were confined to myself, my mom, aunt, and one of my two sisters, all with VHL. The information contained in the Forum told me more than I ever knew. It's nice to know researchers are so interested in VHL. All I can say is 'thank you'." -- Theresa B., Tennessee
"My family has become convinced that one should never go alone to a doctor's appointment. If the news is difficult to hear, the brain shuts off at a certain point and just won't accept any more information. It helps if there are two people there, preferably with the unaffected person taking notes. If you have to go alone, take a tape recorder. You'll be amazed when you listen to the tape the next day." -- Darlene Y., Massachusetts as published in September 1993, VHLFF 1:3
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