|
|
 |
My VHL Calendar
|
VHL Family Forum: ISSN 1066-4130 Volume 2, Number 1 March 1994
Download a printable copy of this issue
- Teamwork for Health: Kansas City, April 15-17, 1994
- University of Kansas Co-Hosts VHL Conference, by Debra Collins, M.S.
- My VHL Calendar, by Patti K., California
- Finding People with VHL in Slovakia, by Otakar Mašek, M.D., Ilava, Slovakia
Because of deep love, one is courageous. -- Lao Tse
- Roberto G.'s Story, by Hartmut Neumann, M.D., Freiburg, Germany
- Families Share Diet and Exercise Tips, by Altheada J. Damon G., Peggy G., G.P., Darlene S., Mark B., Patti K., Ronald S., and Scott C.
- Scientists Unraveling Why Vegetables Retard Cancer, by Natalie Angier, The New York Times
- Our New Soybean Diet, by Darlene S., California
- Shark Warning, Editorial
- Family Gene Map
- Letters to the editor: VHL Handbook, Optometrists
- Sacred Process, by Karen Koenig
|
|
by Patti K., California
Here is a poem that I have created
To keep track of my VHL follow-ups that are so critically dated.
In January it's really no pain
I just have to begin the yearly VHL monitoring process all over again.
In February an MRI of the brain should make sure
That that nasty little brain tumor is shrinking and pure
In March the only issue at mind
Is that annual female checkup from chest to behind
In April it's off to Kansas we go
For the First VHL Conference and to meet others we don't know.
In May if I'm lucky the results might be here
Of the DNA testing that has been going on for almost one year.
In June a 200-mile trip we will take
To a special hospital where a renal angiogram they will make.
In July the month is all mine
I think I'll go swimming to work those kinks out of my spine.
In August it's time to check on that brain lesion once more
Another MRI will make sure that no more gamma knife is in store.
In September the start of another school year is here
Oh! those little second graders are really so dear.
In October the time for a physical exam has come quick
Including the lab-work and yet another "little stick."
In November the whole morning is taken
For a complete spinal MRI they'll be making.
In December one would think you could breathe
But I have to have an abdominal Cat Scan and Retinal exam, if you please.
The year is all over and all I can say
Is hopefully no more surgeries and more time to play.
This is the calendar of a VHL patient who had three surgeries within 7 months and teaches second grade in California.
As published in the VHL Family Forum 2:1, March 1994. For permission to reprint, please contact the VHL Family Alliance at editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.
mystory
|
