Skip the Top Navigation                   BASIC FACTS
                  ABOUT VHL
        CARING FOR
        YOUR HEALTH
         RESEARCH
        
        PROFESSIONAL
        INFORMATION
       ABOUT VHL
       FAMILY ALLIANCE
Skip The Left Navigation

Home

 

Site Search

 

Current Issue

 

Printable Copies

 

Contact Us

 

Click to Donate

 

2008 Issues

 

2007 Issues

 

2006 Issues

 

2005 Issues

 

2004 Issues

 

2003 Issues

 

2002 Issues

 

2001 Issues

 

2000 Issues

 

1999 Issues

 

1998 Issues

 

1997 Issues

 

1996 Issues

 

1995 Issues

 

1994 Issues

 

1993 Issues

 

 

Karen Koenig, 1937-1994

VHL Family Forum: ISSN 1066-4130 Volume 2, Number 1 December 1994
Download a printable copy of this issue

  • Breakthrough Research
  • Call for Volunteers -- VHL Protocol Angiogenesis Inhibitor Trials, by Dr. Judah Folkman and Dr. Emil Voest, Children's Hospital, Boston
  • ALT for Renal Cell Carcinoma
  • The Multi-Step Nature of Cancer
  • Silencing the VHL Gene
  • What Does all this Mean to Us?
  • Karen Koenig, 1937-1994
    • Karen tells her story in poetry
  • Introducing the Medical Advisory Board:
    • Dr. James M. Lamiell, Texas
    • Dr. Hartmut Neumann, Freiburg, Germany

 

Artist and poet, wife and mother,
Karen tells her story in poetry.

 

"My wife Karen has enjoyed doing art all her life, realizing from the age of twelve that she had a mysterious gift for creating a likeness. Her career as an artist began with portraits of her three children in 1972. As time passed, she grew increasingly active as a professional portrait artist. As her children became older and more independent, art filled her life with ever-greater challenges, enjoyment, and satisfaction.

koe4.jpg (23088 bytes)

self-portrait

 

"In 1966, three months after the birth of her third child, Karen discovered that she had von Hippel-Lindau disease (VHL). VHL began to affect her eyes more than twenty-five years ago, and she eventually lost all sight in one eye. But it was not until January, 1992, that impairment of vision in her only seeing eye ended her career as an artist. It was out of these circumstances, and with the encouragement and guidance of my poet brother, David Koenig, that this book came into being." — Steven P. Koenig, M.D., from the introduction to Sacred Process1

I Thank God (for Steven)
(December 8, 1991)
I thank God
For skies and trees
And gentle breeze,
For rabbits, bears,
For joys and cares,
For ice
And mice,
For vegetables and rice,
For you
For me
For I and thee.
Life here’s the best —
We are so blessed!
For merriment and sorrow
To share today, tomorrow
With YOU —
For this
I never really stop
Thanking God.
 
 
I Feel Like a Wild-Eyed Doe
(December 8, 1991, after her second son’s diagnosis and surgery)
I feel like a wild-eyed doe.
All deer know
That there are wolves out there,
But life goes on.
We do our best
To be alert,
To be careful,
To use all of our wit and instinct
And when danger swoops in close,
To fight, fight!
Use all of our strength and resources,
And to hopefully fend off the peril.
When we’re young, agile and strong,
And when we’re only needing to protect ourselves,
Evading the threat is a relatively simple thing.
But now I have a fawn—no, two—in danger!
And the wolves are close, menacing.
I hear their stealthy moves toward us now.
The tiniest crackle and rustle tell me they approach.
My heart pounds.
I strain to be ready
To protect not just myself, but now my babies.
I see glowing wolf eyes,
Their gleaming fangs!
I rear up on hind legs
And find a roar in my throat
Which I never before knew to exist.
My precious young, huddled in the thicket,
Get up on shaky legs to run/resist.
The predators bound toward us, leaping.
I rear up, eyes bulging,
Hoofs flashing, thundering.
Can we survive?
Will all we have to fight with be enough?
How much will we have
Of ourselves or each other
When this onslaught
Is over?
 
 
Thank You
(January 2, 1992, St. Mary’s Hospital, before the angiogram. Abridged.)
Thank you,
Drs. von Hippel and Lindau.
You have given me
The concrete guideposts
To a marvelously full life.
Some people have called me
"Hyper."
But I have only been hurrying
So that I could enjoy
And participate in
As much of life as possible.
 
Since age nineteen,
An insistent inner voice
Has kept telling me
My life might be abbreviated.
So I have worked hard,
Played and prayed hard,
I have run fast, yes,
Have had a wild schedule
Sometimes.
But sometimes
I have lain very still
For very long periods.
 
Some people have called me
"Intense" and "intentional."
But I have only been trying
To make meaning,
Take in the meaning of life.
When there is a small space
Or a limited time factor
Things get a bit crowded,
Condensed.
People who have more time,
Who feel less pressured,
Naturally cannot relate.
They resist, even get hostile
Sometimes.
But heavenly things have been accomplished!
Mending and washings
Of dishes, clothes, and cars,
Mundane "little things"
That weave the fabric
Of a sunny, peaceful life.
 
Love-making and pregnancies,
Blessed mystery of gestation and births.
Infinite preciousness
Of infants, toddlers,
Children growing.
Lunches with the kids
In the Morton Arboretum,
Then lying on the blanket,
Watching the clouds
Through the branches of
The amazing variety of trees.
Church school teaching,
A weekly meeting of twelve Cub Scouts
In the basement.
Batavia Little League and Girls’ Softball games,
Sometimes in three parks
Simultaneously!
Talking on the phone
While baking a cake
And making dinner
And helping with homework.
A dining room table holding
Oil paints and portrait-in-progress,
Sewing materials
For eight Christmas aprons,
And a stack of presents and wrappings
Two feet high. . . .
I have loved every minute of it,
Hectic as it has been.
I thrive on activity.
I relish challenge
It is all so precious,
So holy.
 
Some people have called me
"Weird."
I went out and marveled
At the fuzziness of new soybeans
In the spring fields.
I took my children,
And later my best friend,
To share my awe
At how the corn stalks grow upwards
In ever-opening spirals:
 
One of the countless examples
All around us
All the time
Of ultimate order —God’s handiwork,
God’s incredible, irresistible,
Artistic design,
Always ours for the taking in.
My joy was unbounded
In those fields.
I hugged trees too,
And I’m so very glad
I did.
Again,
Precious, holy.
My viewpoint hasn’t changed one iota.
This level of appreciation,
To me,
Is weird
Like ecstasy is weird.
I wish everyone this weirdness.
 
Some people have found it
Amusing, confusing,
Some very tiring, even exasperating,
How so much,
So many people especially
Could be so beautiful,
So dear to me.
I have never seen a person
In whom there is no beauty.
And I am always looking!
The unending variety of people
In New York City
Delights and fascinates me.
Whether on the streets
Or the subways,
The potpourri of faces makes me feel
Like a kid in a candy shop.
Loveliness everywhere!
 
And so I have had
This wonder-filled
Love affair with Life
All of these years.
Where will it lead next?
Wherever it is,
I will surely find
Beautiful things there.
 
Thank you,
Drs. von Hippel and Lindau.
Thank you, Lord.
 
 
Sacred Process -- As I See it Now III
(March 14, 1993)
Physical sight dimmed and threatened
Hearing diminished
Partial facial paralysis
Poor sense of balance
Post-radiation-impaired memory,
Knowledge of my disease’s progression,
Down several considerable
Body parts.
(I’ve laughingly said
It turns out they were
Spare parts.)
Pieces of my physical self
Already gone ahead of me
Into the other reality.
With all of this,
I will go on,
Loving life as I live it
With as much gusto and dignity
As I can muster.
Life continues to awe me,
Tickle me,
Thrill me,
And, yes, nurture me.
What more could I ask?
The love affair continues.

1. Sacred Process, a book of the poetry and art of Karen Koenig, is privately published and is available for sale from the VHL Family Alliance. One free copy is reserved by Karen's family for each person with VHL, or as a premium for your contribution to VHL information services and research. See pages 11-12 for ordering information.

 

As published in the VHL Family Forum 2:4, December 1994. For permission to reprint, please contact the VHL Family Alliance at editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.

mystory