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Karen Koenig, 1937-1994
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VHL Family Forum: ISSN 1066-4130 Volume 2, Number 1 December 1994
Download a printable copy of this issue
- Breakthrough Research
- Call for Volunteers -- VHL Protocol Angiogenesis Inhibitor Trials, by Dr. Judah Folkman and Dr. Emil Voest, Children's Hospital, Boston
- ALT for Renal Cell Carcinoma
- The Multi-Step Nature of Cancer
- Silencing the VHL Gene
- What Does all this Mean to Us?
- Karen Koenig, 1937-1994
- Karen tells her story in poetry
- Introducing the Medical Advisory Board:
- Dr. James M. Lamiell, Texas
- Dr. Hartmut Neumann, Freiburg, Germany
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Artist and poet, wife and mother,
Karen tells her story in poetry.
"My wife Karen has enjoyed doing art all her life, realizing from the age of twelve that she had a mysterious gift for creating a likeness. Her career as an artist began with portraits of her three children in 1972. As time passed, she grew increasingly active as a professional portrait artist. As her children became older and more independent, art filled her life with ever-greater challenges, enjoyment, and satisfaction. |

self-portrait |
"In 1966, three months after the birth of her third child, Karen discovered that she had von Hippel-Lindau disease (VHL). VHL began to affect her eyes more than twenty-five years ago, and she eventually lost all sight in one eye. But it was not until January, 1992, that impairment of vision in her only seeing eye ended her career as an artist. It was out of these circumstances, and with the encouragement and guidance of my poet brother, David Koenig, that this book came into being." Steven P. Koenig, M.D., from the introduction to Sacred Process1
- I Thank God (for Steven)
- (December 8, 1991)
- I thank God
- For skies and trees
- And gentle breeze,
- For rabbits, bears,
- For joys and cares,
- For ice
- And mice,
- For vegetables and rice,
- For you
- For me
- For I and thee.
- Life heres the best
- We are so blessed!
- For merriment and sorrow
- To share today, tomorrow
- With YOU
- For this
- I never really stop
- Thanking God.
-
-
- I Feel Like a Wild-Eyed Doe
- (December 8, 1991, after her second sons diagnosis and surgery)
- I feel like a wild-eyed doe.
- All deer know
- That there are wolves out there,
- But life goes on.
- We do our best
- To be alert,
- To be careful,
- To use all of our wit and instinct
- And when danger swoops in close,
- To fight, fight!
- Use all of our strength and resources,
- And to hopefully fend off the peril.
- When were young, agile and strong,
- And when were only needing to protect ourselves,
- Evading the threat is a relatively simple thing.
- But now I have a fawnno, twoin danger!
- And the wolves are close, menacing.
- I hear their stealthy moves toward us now.
- The tiniest crackle and rustle tell me they approach.
- My heart pounds.
- I strain to be ready
- To protect not just myself, but now my babies.
- I see glowing wolf eyes,
- Their gleaming fangs!
- I rear up on hind legs
- And find a roar in my throat
- Which I never before knew to exist.
- My precious young, huddled in the thicket,
- Get up on shaky legs to run/resist.
- The predators bound toward us, leaping.
- I rear up, eyes bulging,
- Hoofs flashing, thundering.
- Can we survive?
- Will all we have to fight with be enough?
- How much will we have
- Of ourselves or each other
- When this onslaught
- Is over?
-
-
- Thank You
- (January 2, 1992, St. Marys Hospital, before the angiogram. Abridged.)
- Thank you,
- Drs. von Hippel and Lindau.
- You have given me
- The concrete guideposts
- To a marvelously full life.
- Some people have called me
- "Hyper."
- But I have only been hurrying
- So that I could enjoy
- And participate in
- As much of life as possible.
-
- Since age nineteen,
- An insistent inner voice
- Has kept telling me
- My life might be abbreviated.
- So I have worked hard,
- Played and prayed hard,
- I have run fast, yes,
- Have had a wild schedule
- Sometimes.
- But sometimes
- I have lain very still
- For very long periods.
-
- Some people have called me
- "Intense" and "intentional."
- But I have only been trying
- To make meaning,
- Take in the meaning of life.
- When there is a small space
- Or a limited time factor
- Things get a bit crowded,
- Condensed.
- People who have more time,
- Who feel less pressured,
- Naturally cannot relate.
- They resist, even get hostile
- Sometimes.
- But heavenly things have been accomplished!
- Mending and washings
- Of dishes, clothes, and cars,
- Mundane "little things"
- That weave the fabric
- Of a sunny, peaceful life.
-
- Love-making and pregnancies,
- Blessed mystery of gestation and births.
- Infinite preciousness
- Of infants, toddlers,
- Children growing.
- Lunches with the kids
- In the Morton Arboretum,
- Then lying on the blanket,
- Watching the clouds
- Through the branches of
- The amazing variety of trees.
- Church school teaching,
- A weekly meeting of twelve Cub Scouts
- In the basement.
- Batavia Little League and Girls Softball games,
- Sometimes in three parks
- Simultaneously!
- Talking on the phone
- While baking a cake
- And making dinner
- And helping with homework.
- A dining room table holding
- Oil paints and portrait-in-progress,
- Sewing materials
- For eight Christmas aprons,
- And a stack of presents and wrappings
- Two feet high. . . .
- I have loved every minute of it,
- Hectic as it has been.
- I thrive on activity.
- I relish challenge
- It is all so precious,
- So holy.
-
- Some people have called me
- "Weird."
- I went out and marveled
- At the fuzziness of new soybeans
- In the spring fields.
- I took my children,
- And later my best friend,
- To share my awe
At how the corn stalks grow upwards
In ever-opening spirals:
-
- One of the countless examples
- All around us
- All the time
- Of ultimate order Gods handiwork,
- Gods incredible, irresistible,
- Artistic design,
- Always ours for the taking in.
- My joy was unbounded
- In those fields.
- I hugged trees too,
- And Im so very glad
- I did.
- Again,
- Precious, holy.
- My viewpoint hasnt changed one iota.
- This level of appreciation,
- To me,
- Is weird
- Like ecstasy is weird.
- I wish everyone this weirdness.
-
- Some people have found it
- Amusing, confusing,
- Some very tiring, even exasperating,
- How so much,
- So many people especially
- Could be so beautiful,
- So dear to me.
- I have never seen a person
- In whom there is no beauty.
- And I am always looking!
- The unending variety of people
- In New York City
- Delights and fascinates me.
- Whether on the streets
- Or the subways,
- The potpourri of faces makes me feel
- Like a kid in a candy shop.
- Loveliness everywhere!
-
- And so I have had
- This wonder-filled
- Love affair with Life
- All of these years.
- Where will it lead next?
- Wherever it is,
- I will surely find
- Beautiful things there.
-
- Thank you,
- Drs. von Hippel and Lindau.
- Thank you, Lord.
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- Sacred Process -- As I See it Now III
- (March 14, 1993)
- Physical sight dimmed and threatened
- Hearing diminished
- Partial facial paralysis
- Poor sense of balance
- Post-radiation-impaired memory,
- Knowledge of my diseases progression,
- Down several considerable
- Body parts.
- (Ive laughingly said
- It turns out they were
- Spare parts.)
- Pieces of my physical self
- Already gone ahead of me
- Into the other reality.
- With all of this,
- I will go on,
- Loving life as I live it
- With as much gusto and dignity
- As I can muster.
- Life continues to awe me,
- Tickle me,
- Thrill me,
- And, yes, nurture me.
- What more could I ask?
- The love affair continues.
1. Sacred Process, a book of the poetry and art of Karen Koenig, is privately published and is available for sale from the VHL Family Alliance. One free copy is reserved by Karen's family for each person with VHL, or as a premium for your contribution to VHL information services and research. See pages 11-12 for ordering information.
As published in the VHL Family Forum 2:4, December 1994. For permission to reprint, please contact the VHL Family Alliance at editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.
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