Dr. Berton Zbar and his team at the U.S. National Institutes of Health (NIH) are looking for VHL families not previously seen at NIH, to assist in their renewed effort on VHL research. They will analyze the VHL gene of a family and provide a "road map" so that additional family members can be screened easily.

"We are interested in families that have not previously been seen at NIH. We are particularly interested in families with asymptomatic children who are at risk of developing VHL. I would suggest that you have someone from the families contact me in Frederick, Maryland, on Fridays at 301-846-1288. We will be examining both affected and unaffected family members."

As printed in the VHL Family Forum 3:2, June 1995:. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.