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Resources
National Patient Air Transport Hotline, 1-800-296-1217. The NPATH hotline offers free information about all long distance patient air transport options -- free, charitably assisted and commercial. Patients, families, and medical professionals can all use NPATH to find the best transportation options to reach necessary medical care.
A Woman's Guide to Coping with Disability addresses the special needs of women with disabilities and chronic conditions, such as social relationships, sexual functioning, pregnancy, childrearing, caregiving, and employment. Special attention is paid to ways in which women can advocate for their rights with the health care and rehabilitation systems. Written for women in all age categories, the book has chapters on disabilities including spinal cord injury. Includes information about service providers, psychological aspects, and special assistive devices. ISBN 0-929718-15-1, $39.95
As published in the VHL Family Forum, 3:3, September 1995. For permission to reprint, please contact the VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.
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