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Lets Hear Your Voice
Policy-makers need to hear from people like us so that they create the right laws. Watch your local newspaper for hearings in your own state. They need to hear that DNA information is essential to the best management of our health, and that we need protection of our right to obtain and use that information without fear of loss of coverage or jobs.
California: "Promise and Perils of Genetic Screening," Oct 24, 1996, 1:30-3:00 p.m., State Capitol, Sacramento, Room 113.
Massachusetts Public Forums held by the Special Committee on Genetic Information Policy: Worcester, Oct 3, 4:30 pm, UMass Medical Center, Biotech 2, 373 Plantation St, 3d floor conference room; Boston, Oct 7, 10-2, Boston State House.
As published in the VHL Family Forum, 4:3, September 1996. For permission to reprint, please contact the VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.
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