VHLFA: Second VHL Grant

Second VHLFA Research Grant

December 1996
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Know Your Mutation! by Berton Zbar, M.D., National Institutes of Health
Research Progress - with your help! - with your help! - report on progress on crystallizing pVHL, by Dr. Diana Griffith, Massachusetts General Hospital
Hearing Aid for VHL Patients with Bilateral Endolymphatic Sac Tumors by Marangos, Kempermann, Neumann et al.
Recent Insights into the Functions of the von Hippel-Lindau Protein by William G. Kaelin, Jr
Second VHLFA Research Grant awarded to Dr. Othon Iliopoulos, Dana Farber Cancer Institute.
Chapter Events - Michigan, Delaware, Britain, Ireland, New York, North Carolina, Mid-South, and Arizona
Success and Recognition, by Paul B., Quebec, Canada
Miracles, by Audrey C., North Carolina
Plans for Conference 1997 - Bethesda, Maryland, May 2-4, 1997
The VHL Athlete, by Jennifer K, Australia
Eddie's Story, by Linda G., Georgia
Gifts that Endure - bequests and charitable remainder trusts
Reaching More People, Funding Research - VHLFA Annual report, Fiscal Year 1996

We are pleased to award our
Second Research Grant
in partial support of a research fellowship for
Dr. Othon Iliopoulos
of Dr. Kaelin's team, whose exciting work
in understanding the function of the VHL protein
is reported here.

Thank You

I would like to express my sincere thanks to the von Hippel-Lindau Family Alliance for your recent contribution which will support the work being done by Dr. Othon Iliopoulos in my laboratory. As you know, Othon is continuing to try to determine how the protein produced by the von Hippel-Lindau gene prevents tumor formation. The long term goal of his work is to lay a solid foundation for the development of drugs which will, on one level, 'mimic' the activity of the von Hippel-Lindau protein and inhibit tumor growth.

I was extremely impressed, inspired, and moved by the many wonderful people I met during my trip to the Hawaii VHL meeting. Please extend an invitation for VHL Family Allliance members to come tour the laboratory and find our more about what we are doing. Short of that, please pass the word that we, along with many other members of the research community, are working hard to get us closer to the day when this disease can be eradicated.

With best wishes,
William G. Kaelin, Jr., M.D.
Dana-Farber Cancer Institute, Boston, Mass.

As published in the VHL Family Forum, 4:4, December 1996. For permission to reprint, please contact the VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.