Brain Awareness Week

The VHL Family Alliance, in cooperation with the Dana Alliance for Brain Initiatives and many other organizations for neurological disease, is observing Brain Awareness Week. Many related activities will be conducted by member organizations through March and April.

Meetings - Articles - New VHL Handbook - New Primer of Brain Tumors - Home

Meetings

• Focus Conference on Stereotactic Radiosurgery, May 2, 1997 -

• Central Nervous System sessions at Teamwork for Health, the 4th International VHL Patient/Provider Conference, May 3-4, 1997 -

• Boston - Dr. William G. Kaelin, Jr.- April 19, 1997

Articles

• Living with a Brain Tumor

• Virtual Clinical Trials of Brain Tumor Treatments

• New Technology to make speech clearer

• Dana Alliance Brain Awareness Week homepage

New VHL Handbook

The 1997 edition of the VHL Handbook will soon be on the Internet, and will be printed and distributed to all members with the June issue of the newsletter. [The Second Edition was distributed with the June 1997 newsletters.]

The intention of the Handbook is to provide a basis of information for the patient, the family, and the health care team about this rare condition. Because information about VHL is not widespread, the VHL Family Alliance works to provide a chain of information that people everywhere can tap into. It consists of the Handbook, the local support chapters, the telephone and internet information lines, our Medical Advisors, and centers of expertise throughout the world. If you don't find the information you need in the printed material, call or write and we will do our best to connect you with the expert you need. info@vhl.org [Return to top]

One copy of the handbook is free, additional copies are available for $2 each.

New Primer of Brain Tumors

The completely revised 6th edition of A Primer of Brain Tumors is now available from the American Brain Tumor Association (ABTA). The Primer is available from the American Brain Tumor Association, 2720 River Road, Des Plaines, IL 60018, Tel: +1 847 827-9910, Fax: +1 847 827-9918; E-mail: abta@aol.com. Single copies are available free of charge, limited to one copy per family. [Return to top]

As published in the VHL Family Forum, newsletter of the VHL Family Alliance, March 1997. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.