Lisa Carcieri, graduate student at Brandeis University in their genetic counseling program, is conducting a survey of VHL family members to assess their opinions and perceptions about DNA testing. Surveys were mailed to approximately 500 VHLFA member households in the United States, chosen at random from the VHLFA database.
As published in the VHL Family Forum 5:1, March 1997. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.
