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Social Issues in Genetics

June 1997
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Endolymphatic Sac Tumor: Hearing Loss in VHL
- Testing hearing, checking for possible ELST
- Research Study Seeking People with ELST
Bethesda Meeting highlights - VHL Conference 97!
- ordering conference audio tapes
Survey Results: Attitudes Toward Genetic Testing,
by Lisa C. Carcieri
Ask the Experts: "What do the terms "grade" and "stage" mean when applied to VHL kidney tumors? "
Investment in Cancer Research, Dr. Klausner's budget for the National Cancer Institute
Insurance and Genetic Disorders, by Paula Sicard, esq.
Social Issues in Genetics: Gene Letter
United Way Donor Choice
Massachusetts meeting, by Laurel Newson, featuring a talk by Dr. William G. Kaelin of Dana Farber Cancer Institute
England and Canada affiliates
Board of Directors - our Thanks to retiring Board members, and welcome new!
- Introducing Don Marshall, Publication Committee
Audrey and Altheada honored
About the New Handbook!

An Internet-based Newsletter, The Gene Letter, discusses the scientific and societal issues in Genetics. Its purpose is to inform consumers and professionals about advances in genetics and to encourage discourse about emerging medical, ethical, legal, and policy dilemmas.

The Gene Letter was established by the Shriver Center under a grant from the U.S. Department of Energy/ELSI Program, by Dr. Philip R. Reilly, M.D., J.D., Dorothy C. Wertz, Ph.D., and Robin J.R. Blatt, R.N., M.P.H.. In its first year, The Gene Letter is appearing every other month with news updates as appropriate. Regular columns include one or more on: Health, Science, Ethics, Law, Society, International Developments, Book Reviews, a Student Corner, In the News, Events, Conferences, and a list of Gene Resources. The Gene Letter also operates an uncensored chatroom. http://www.geneletter.org

As published in the VHL Family Forum 5:2, June 1997. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.