Symposium in Paris

December 1997
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Exploring the Faith Factor
by Dr. Herbert Benson, Mind/Body Medical Institute, Boston
Ask the Experts:
- Endolymphatic Sac Tumor, reply by Dr. Oldfield
- Air Travel and Brain Tumors, reply by Dr. Lamiell
Teen Conference Calls
Advocacy and You, by Don M.
- Patient's Bill of Rights
- Contacting Congress
Wacky VHL Humor, by Tania D., Canada
Sleepless in Seattle! by Alice Coday
- Patient/Provider Conference in Seattle, June 1998
Symposium in Paris, September 1998
Local Meetings, reports from around the world
British group has new leaders
Irish Fun Run, by Maura Hurley
VHL in Poland, by Altheada Johnson
When's the Next Meeting?
Meet the Directors: Renée Rosado and Madge Hall
Ask the Family:
- Unaffected siblings, reply by Evabeth T.
VHLFA Annual Report, fiscal 1997

The biennial Medical Symposium on VHL will be held September 16-18, 1998, in Paris, hosted by Dr. Stéphane Richard and VHL France, Mireille Proux, Présidente. The meetings will be held in English, with some French translation.

The meetings will take place in the Luxembourg Palace, built in the 1620’s for Marie de Médicis, the widow of King Henry IV of France and grandmother of Louis XIV. The palace complex sits in the beautiful Luxembourg gardens.

The medical meetings will be held Wednesday-Friday, and the language will be quite scientific. A formal dinner is planned for Thursday evening. Families are especially invited Friday afternoon, when there will be a special session designed as an exchange of information among families and health care professionals.

A touring program is being organized for companions of the attendees. Registration fees will be announced in March. This 17th-century structure is not wheelchair accessible. Please let us know if accommodations for wheelchairs is needed. For information about the area, see http://www.paris.org/Monuments/Luxembourg

As published in the VHL Family Forum 5:4, December 1997. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.