BASIC FACTS
ABOUT VHL

CARING FOR
YOUR HEALTH

PROFESSIONAL
INFORMATION

ABOUT VHL
FAMILY ALLIANCE

Printable Copies

Click to Donate

From the Policies of the VHL Family Alliance

March 1998
Download a printable copy of this issue

Fifth Anniversary Issue -- What we have learned
Childbearing Choices - a series of true stories shared by members
with definitions and index to this series of articles
and an excerpt from the VHLFA Policies
- Our Healthy Baby
- A Child of Our Love
- Grieving and Going On
- Having Normal Children
- VHL and Pregnancy
- Life
- Roll of the Dice
- Taking the Guilt out of VHL, by Peggy M.
Professional Perspective, by Debra Collins, genetic counselor, University of Kansas Medical Center, Kansas City
Mother Care
Pre-Implantation Testing, by Luba Djurdjinovic, Genetic counselor, Ferre Institute, Utica, NY
Using PGT, Opinions from the MEN/VHL Conference in the Netherlands, June 1997, reported by Joyce Graff
Meet the Board Members - Kelly Heselton, Treasurer
Advocacy and You, part 2, by Don M.
Cancer Defense and Sleep
London Concert honors Tim Mason, by Marshall Marcus and Jan Mason
Remembering Tom Werner, by Evelyn Werner
Seattle, Here We Come!
When's the Next Meeting
Teen conference call

4.C. Childbearing is a delicate issue. As a group, the Alliance has only one opinion: that ultimately the decision whether or not to bear a child is a personal decision on which there are only two votes that count: those of the two individual parents involved. The Alliance offers only information, not opinion, on subjects relating to childbearing, eugenics, and pre-natal testing. Particularly because of the very strong opinions around the topic of abortion, the Alliance wishes to be seen as entirely neutral on this subject.

Any individual is entitled to share their own story, as long as it is clearly positioned as their personal story, and not advice, and particularly as not the opinion or advice of the Alliance.

As printed in the VHL Family Forum 6:1, March 1998. For permission to reprint, please contact VHL Family Alliance, info@vhl.org.