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Seattle! Paris!

March 1998
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Fifth Anniversary Issue -- What we have learned
Childbearing Choices - a series of true stories shared by members
with definitions and index to this series of articles
and an excerpt from the VHLFA Policies
- Our Healthy Baby
- A Child of Our Love
- Grieving and Going On
- Having Normal Children
- VHL and Pregnancy
- Life
- Roll of the Dice
- Taking the Guilt out of VHL, by Peggy M.
Professional Perspective, by Debra Collins, genetic counselor, University of Kansas Medical Center, Kansas City
Mother Care
Pre-Implantation Testing, by Luba Djurdjinovic, Genetic counselor, Ferre Institute, Utica, NY
Using PGT, Opinions from the MEN/VHL Conference in the Netherlands, June 1997, reported by Joyce Graff
Meet the Board Members - Kelly Heselton, Treasurer
Advocacy and You, part 2, by Don M.
Cancer Defense and Sleep
London Concert honors Tim Mason, by Marshall Marcus and Jan Mason
Remembering Tom Werner, by Evelyn Werner
Seattle, Here We Come!
When's the Next Meeting
Teen conference call

As this issue goes to press, the Seattle meeting is almost here! We hope to see you there.

The Paris meeting is looking very exciting. Dr. Stéphane Richard in Paris has organized an outstanding meeting, with more than 100 physicians already registered to attend. The special registration fee for families is 200FF for one day, or 500FF for the three day meeting, including a special gala dinner one night. The full registration packet is on the internet at www.vhl.org/meetings or may be requested from our phone or e-mail hotlines. Several families are staying at the Comfort Inn Mouffetard. Please join us September 16-18!

Publication from the Dutch Symposium

The special issue of the Journal of Internal Medicine on the MEN and VHL meeting in 1997 in Holland will appear in June 1998. Altogether 26 articles will be published as well as a report on the opinion poll.

As printed in the VHL Family Forum 6:2, June 1998. For permission to reprint, please contact VHL Family Alliance, info@vhl.org.