We are delighted to welcome the Massachusetts General Hospital in Boston to our Clinical Care Program. Dr. Katherine B. Sims, Neurogenetics, is the sponsoring physician for the VHL Clinical Care Center there.

You can reach her at the Developmental Neurogenetics Clinic, +1 (617) 726-5732, Fax: +1 (617) 724-9620, E-mail: sims@helix.mgh.harvard.edu.

A VHL CCC is not a building, not even a day-of-the-week, rather it is a "state of mind." These Centers are familiar with VHL, offer the full range of diagnostic and clinical services people with VHL need, and have agreed to ensure that care is coordinated across specialties. They are active members of our worldwide "chain of information," helping to support local physicians in obtaining expert advice on this rare disorder. The complete list of clinical care centers is in the back of the Handbook and is also maintained on the internet at http://www.vhl.org. The MGH Neurogenetics service was the original sponsor of our website.

For questions or feedback on the CCCs please contact the Clinical Care Committee, clinics@vhl.org.

As printed in the VHL Family Forum 6:2, June 1998. For permission to reprint, please contact VHL Family Alliance, info@vhl.org.