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VHL: Quest for a Cure

March  1998      
Download a printable copy of this issue

 

An idea born at the Boston meeting bears fruit at the Seattle meeting. VHL: Quest for a Cure will be shown for the first time at the opening of the Seattle meeting. This 15-minute video provides an overview of what VHL is, the importance of preventive care, and our search for a cure. Thanks to producer Fred Simon, and Cary Schwanitz and KOAT-TV, Albuquerque, New Mexico, for the special narration and editing that give it its polish, and to all the VHL families who sent in photos for a family album at the end. VHL: Quest for a Cure is suitable for viewing by medical audiences as well as the general public. 15 minutes, $20. See page 15 for ordering details. One copy will be sent to each Chapter.

 

Thanks to Lois Erickson

 

Lois Erickson will be retiring from the Board of Directors this year. Lois has been one of the Directors of the VHL Family Alliance since its birth in 1993. She has served in a number of roles: membership, fundraising, professional education, and on the 800 line, working to build the Alliance. We are very grateful to Lois for her five years of faithful service. We look forward to continuing to work with her in her on-going role as Chairman of the Minnesota chapter. Lois lives with her husband Donald in Bloomington, Minnesota, and has two children: Lois and Chad, and one grandchild.

 

Thanks to Madge Hall

 

Madge Hall has resigned from the Board, but continues as Chairman of the Oklahoma chapter. She is moving into retirement in Oklahoma, and has stepped down from the Public Relations Committee. We thank Madge for her service during the past year.

 

As printed in the VHL Family Forum 6:2, June 1998.  For permission to reprint, please contact VHL Family Alliance, info@vhl.org.