VHL Video Now Available!

We are delighted to announce the availability of VHL: Quest for a Cure. This 15-minute video presentation depicts life with VHL, its hopes and challenges, and the importance to everyone of finding a cure.

This project was originally conceived in 1996, and is now complete thanks to the hard work, vision and dedication of a large team of people:

• Filmed and directed by Fred Simon of Fred Simon, Productions, in Wellesley, Massachusetts
• Script editing by Amy Gray Light, Arkansas
• Narrated by Nelson Martinez, anchorman, KOAT-TV, Albuquerque, New Mexico
• Editing organized and supervised by Cary Schwanitz, KOAT-TV
• Titles and Editing services donated by the management and staff of KOAT-TV, Mary Lynn Roper, General Manager
• Interviews with members across the country

It includes a montage of photos of VHL families, photos submitted by members from as far away as Belgium.

We are grateful for the participation of every person who worked on the video, who helped to inspire it, craft it, or review the script, and who helped to bring it at last to fruition.

We are very pleased to present to you VHL: Quest for a Cure. We hope that you will show it to groups in your community, and that it will help to introduce VHL, to raise consciousness in the medical community and among the general public, and that it will bring hope and a sense of community to people with VHL throughout the world.

Click here for ordering information.   Available in US (NTSC) or European (PAL) formats on VHL cassette.