Let's Keep Up with Jay!

December 1998
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There was broad agreement among the physicians present that 3 centimeters is the best guideline for when to operate on
kidney tumors.

Pioneers Needed for the New Frontier
Managed Care
Ask the Experts: DNA Testing
- Should we test again? - Dr. Roberta Pagon
- How long should it take? - Joyce Graff
Atlanta, June 4-6, 1999, with 14.5 hours CME credits
Maria and the Baby Seals - Maria S., Pennsylvania
Volunteers Making a Difference
- Help in a Crisis - Robin K., Texas
- A Letter of Thanks - Fran M., Michigan
Keeping Up with Jay
- Editor's Mailbag: the 2-hit theory
Gifts that Support Research
Therapy for the Brain
The observations in this study are the strongest arguments seen to date for pre-symptomatic screening for brain tumors. . . . Tumors that are extremely slow growing over years may give rise to virtually no cognitive deficits, while tumors with more "momentum", or a fast-growing cyst, may cause severe impairments.
A Word to Grandparents
1999 Calendars include Member Art
Let's Keep Up with Jay

How much can you contribute to match Jay's effort?

A penny a mile for $21.60?

Ten cents a mile for $216?

A dollar a mile for $2,160?

Jay's part in accomplishing his goal is walking the entire 2,160 miles of the Appalachian Trail -- a phenomenal effort of courage and persistence.

However, without your contribution, he still will not reach his ultimate aim of raising $100,000 to support research and education to conquer VHL.

Please give what you can . . . and help us reach other potential donors.

Together we can change the world!

Your contributions are working! See this year’s Research Report for exciting progress, and page 4 of this issue.

As printed in the VHL Family Forum 6:4, December 1998. For permission to reprint, please contact VHL Family Alliance, info@vhl.org.