Annual Report,

Fiscal 1998, ended June 30, 1998

This year we reached ten more countries, and a thousand more people. We are now reaching more than 8000 people in 47 countries, up 16.2% over last year. Over 150 doctors attended the Paris meeting alone. At the same time, our operating budget is up 28% to a total of only $61,620.

We pay no staff, we do not rent office space. The money we raise goes directly into programming and research. We are able to do this because of the hard work of a large number of dedicated volunteers in twelve countries around the world. Volunteers provide telephone and internet inquiry service, maintain our web site at www.vhl.org, and provide outreach in their local areas.

The Rasmussen Family grant gives an extra boost to our research funding power. Call or write for a list of special projects that need funding

Total Revenue for Fiscal 1998 (ended June 30, 1998) was $160,730. Of this, a total of $87,573 was allocated to research funding.

As printed in the VHL Family Forum 6:5, Research Report, December 1998.  For permission to reprint, please contact VHL Family Alliance, info@vhl.org.