We have some exciting news regarding the Scandinavian Knowledge Base Working Group. Vibeke will be attending part of the 7th meeting of the Scandinavian neuro-oncology group, in Lillehammer, Norway, on the 18-21 March. One full day of the meeting is to devoted to VHL. VHLFA Denmark is sponsoring the participation of Dr Thomas Rosenberg, an eye specialist from Denmark. Dr. Rosenberg, a major asset to the Danish VHL association, was unable to attend the Paris meeting because of a prior engagement. He is very keen to make international contacts within the field of VHL.
Also attending the meeting is Dr. Mika Niemelä, neurosurgeon from Finland, who as you will recall was at the Paris meeting. Most importantly, doctors from all Scandinavian countries will be there. A major breakthough in international cooperation is at hand.
We have also just had two articles published in the Danish Weekly Medical Journal. Both articles are written by doctors who help us with their support and knowledge in the association. The first article is written by Dr. Hans Ulrik Møller, whom you met in Paris. He wrote a detailed report of the VHL Paris meeting. The second article was written by Dr. Marie Louise Bisgaard, a clinical geneticist, who is now doing DNA testing in Denmark.
As printed in the VHL Family Forum 7:1, March 1999. For permission to reprint, please contact VHL Family Alliance, info@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.