"Everyone who showed up to celebrate with Jay went an extra mile or two to do so -- it was not a pretty sunshine day; it was not an easy drive; it was not a pleasant walk in the woods. Everyone made a special effort and stretched outside their comfort zone and persevered -- and we did it because of Jay. We hope that everyone will keep Jay's model and inspiration in their hearts when they need to remind themselves to hang in there, keep going, and just do it." -- Joyce Graff, Dahlonega, Georgia, January 23, 1999
As a vertical line of tornadoes marched eastward across the map of Georgia, a stalwart group of family and friends gathered in Dahlonega, Georgia, to walk the last mile of the Appalachian Trail with Jay and celebrate with him.
Even if you figure a 34-inch pace, which would be longer than most paces on the Trail, Jay walked 4 million paces from Maine to Georgia. It’s that kind of extra-ordinary effort it will take to cure VHL. We’re on the trail of a cure. With teamwork and persistence, we will do it. Thanks to all who are helping!
"I am sure Georgia has been on your mind since you began this journey last August, and as one who has had the privilege of following your progress, it is my distinct pleasure to say "Welcome Home, Patch!"
Courage against great odds is the essence of our American Spirit, and your perseverance in completing this goal stretches the boundaries of our potential as a people. As the trail ends, and you continue your most difficult challenge, I am confident you will remain a role model for individuals living with von Hippel-Lindau syndrome.
Your remarkable Maine to Georgia expedition is now part of the rich history and lore of the Appalachian Trail, and for those striving to overcome von Hippel-Lindau Syndrome, you are a true folk hero. Again, congratulations on your thru-hike and best wishes to you and Paz for a long and happy marriage." -- Arlen Spector, U.S. Senate, Pennsylvania
As printed in the VHL Family Forum 7:1, March 1999. For permission to reprint, please contact VHL Family Alliance, info@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.
