I am honoured that you have asked me to become a member of your clinical care programme. The appropriate contact name at the present time is myself and the details are as follows:

Dr Susan M Huson
Consultant Clinical Geneticist
Department of Clinical Genetics
The Churchill Hospital
Old Road
Headington, Oxford, OX3 7LJ: Telephone: +44 (1865) 226024; Fax: +44 (1865) 226011; E-mail: shuson@immsvr.jr2.ox.ac.uk

I would be happy to be contacted by anyone in the UK with VHL queries, but we usually recommend that patients go to their nearest genetic centre as a lot of the UK genetic centres have taken on the role of co-ordination of the VHL family care in their areas. The areas we specifically cover are Northamptonshire, Oxfordshire, Buckinghamshire, Berkshire and Wiltshire.

We run a VHL clinic day about five times a year, when people with the condition or at risk of it can have co-ordinated screening on the same day. They have a clinical assessment with myself or one of my team, indirect ophthalmological examination with Dr. Peggy Frith, our Consultant Ophthalmologist, and MRI scans as appropriate.

The VHL Family Alliance welcomes Churchill Hospital to the Clinical Care Centers Program.

As printed in the VHL Family Forum 7:2, June 1999. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.