There is an excellent multi-media glossary of genetic terms available at http://www.nhgri.nih.gov/DIR/VIP/Glossary/ In addition to written explanations and pictures, there are also audio explanations.

United Resource Networks offers a continuum of products and services designed to help people who have received a transplant manage their transplant benefit. From the nation’s leading transplant network, to media appropriateness review services, United Resource Networks offers clients the opportunity for improved outcomes and significant cost savings associated with transplantation. See http://www.urnweb.com or call 1-800-847-2050 (U.S.)

Our VHLFA German affiliate, Vereins für von der von-

Hippel-Lindau (VHL) Erkrankung betroffener Familien e.V., has a beautiful new homepage in German, thanks to the efforts of member Andreas B. There is an online discussion group vhl-de@egroups.com, and chats are held in German about once a month. See http://www.hippel-lindau.de

As printed in the VHL Family Forum 7:4, December 1999. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.